Hurricane Helene Relief for Wheelchair Users Is on the Way

Here’s How You Can Apply—and How You Can Show Solidarity

United Spinal Association has provided direct relief to survivors of natural and human-caused disasters going back to the historic hurricane season of 2017. Thanks to the generosity of the Neilsen Foundation, we distributed life-changing mini-grants to hurricane, wildfire, and flood survivors to wheelchair users across the country.

All-terrain wheelchairs coming to Connecticut state parks

All-terrain wheelchairs are coming to five Connecticut state parks in October. The Department of Energy and Environmental Protection (DEEP) piloted the program and started with purchasing 10 all-terrain wheelchairs. One model has a track system and the other is a wheel-based chair. Both give people the ability to venture off onto the trails who may not have been able to before!

Take - a - Vet Sailing September 14, 2024

Join Sail Connecticut Access and the Spinal Cord Injury Association of Connecticut on Saturday September 14, 2024 for a day of sailing, adventure and camaraderie for local disabled veterans, their friends and families.  Click below to sign up or for more information: 

iManage-SCI: Study Participation Opportunity

Conducted by The Center for Health Assessment Research and Translation, University of Delaware. Would you like to try iManage-SCI,  our web-based, interactive system for individuals with SCI that is designed to improve well-being? Participation would include the following:

• Independently access and use the system via the internet once a week for 6 weeks
• Review system content and complete brief, weekly assessments

Congratulations to Diana Pernigotti, our latest Philip B. Arnold Award recipient!

On Saturday, June 29, 2024, the Spinal Cord Injury Association of CT honored Diana Pernigotti as the latest recipient of the esteemed Philip B. Arnold Award. 

Diana Pernigotti has served the spinal cord injury community for over 15 years. Through her work and volunteer services, she has connected people with resources, education, and opportunities with the main goal of assisting in improving the quality of life for persons with a spinal cord injury.

Disability Community Wins Big on Airline Accessibility in New FAA Bill

Lawmakers pass bill that will lower wheelchair repair times

Disability Rights and Justice Rally 4.18.2024

Join us, on April 18, 2024! Tell a friend, bring a friend, we will start gathering at 12 pm on Capitol Southside Lawn, Parking At 300 Capitol Ave. “Away with the GUARDRAILS” denying us...

• Mental Health Peer-Run Respites
• Husky C Without Forced Poverty
• Timely Wheelchair Repairs At Home
• Accessible Medical Exam Equipment

Wheelchair users protest long repair wait times in Hartford

HARTFORD, Conn. (WTNH) — Dozens of wheelchair users took over a section of the Legislative Office Building in Hartford on Thursday to protest lengthy wheelchair repair wait times.

The Center for Disability Rights organized the protest to push for legislation and bring attention to the ongoing repair issue.

Attend the Rally for Wheechair Repair Reform February 15th

On February 15th, wheelchair users from across the state need you to join them in-person from 12:30-2pm in the Legislative Office Building (LOB) 2nd Floor Atrium at 300 Capitol Ave #5100, Hartford, CT. Advocates will start gathering at noon or sooner in the LOB cafeteria (1st floor). DO NOT bring signs. Together, we will support the transformational recommendations by the legislative Wheelchair Repair Task Force to tackle the absurd delays faced by 90% of roughly 5,000 CT consumers. Click below for more informatiion and to sign up:

Disabled Sailing Online Seminar: Wheels On The Docks

When Tues Jan 30 from 7:00pmEST-8:00pmEST

Presented by US Sailing and Challenged Sailors San Diego. Wheels On The Docks - renowned adaptive sailing experts Betsy Alison and Jane Dunn will share best practices for getting sailors who are wheelchair-users on the docks and comfortably in boats. If you're a yacht club manager or summer program advisor, or someone seeking to expand access for sailing members with disabilities, do not miss this important online seminar!

Participate in a Study Using a Physical Activity App

Mass General Brigham is offering a health and wellbeing study using a physical activity social networking mobile app designed for people with spinal cord injury, called SCI-Lynx.  Click below for more information and to see if you may qualify to participate:

Connecticut Wheelchair Repair Task Force pushes for change

NEW HAVEN, Conn. (WTNH) - Approximately 5,000 people in Connecticut rely on wheelchairs, otherwise known as Complex Rehabilitation Technology or CRT, for mobility and independent living. Wheelchair users told News 8 that repairing their chairs is a nightmare, as it normally takes weeks. After a bill failed to pass during the last legislative session to improve wheelchair repair times, a state task force was established, comprising 24 people to study the issue and find solutions.

Registration Opens for Gaylord Adaptive Skiing Program

Take - a - Vet Sailing September 9, 2023

The Annual Take - a - Vet Sailing event is back! Join us for a day of fun and sailing on Long Island Sound from Brewer's Pilot's Point in Westbrook CT.  Morning coffee and donuts and lunch will be provided.

Daisy Award given to Karen Doukas, RN of Gaylord Hospital

With Karen’s 17 years of SCI experience, she is looked to as a role model and a mentor. Her dedication to nursing and helping those around her goes beyond the doors of Gaylord and into those in the community around her.

Seated Strong Exercise Classes

Seated Strong is a virtual upper extremity exercise class held on Zoom every Tuesday at 6:00 pm, taught by Quinnipiac Physical Therapy Students and overseen by faculty.  All exercises can be done from a chair or wheelchair.

YOUR VOICE COUNTS - Please take and share this important Survey!

Seated Strong Exercise Classes

These CT residents have muscular dystrophy, quadriplegia or other injuries....

.... What they don’t always have is wheelchairs that work.

Action Alert: Support Safe Air Travel for Wheelchair Users

This week, Representative Dina Titus and Senator Tammy Baldwin reintroduced the Air Carrier Access Amendments Act. This legislation's goals are improving safety, accessibility, and accountability in air travel, where members of our community too often face damaged wheelchairs, injuries, and even death.

New Public Hearing Date on Wheelchair Repair

Date/Time: Tuesday, February 28, 2023 at 11:00 A.M. in Room 2E of the LOB and via Zoom

2022 Candidates’ Forum on Disability Issues Oct 12, 2022

A non-partisan forum with candidates (or their surrogates) running for Governor, Lt. Governor, Attorney General, Secretary of the State, and United States Congress. Candidates will answer questions from Diane Smith on disability topics that include employment, transportation, housing, health care and other related issues.

WEBINAR: Sexuality and Sexual Function in SCI

WEBINAR: Men Living with Paralysis and Dating

Join us on 6/20/2022 @ 3pm for "Men Living with Paralysis and Dating," an open and honest panel discussion with four men living with paralysis sharing their experiences and perspectives on dating. Topics will include insecurities about using dating apps, finding confidence in oneself, being open and truthful with a partner, sex and intimacy, and learning to get out and meet new people. In addition, the panelists will offer real-life experiences and challenges associated with dating with paralysis.

Participate in Disability Travel Research, Chance to Win Prizes

Participants needed for the international SCI Exercise Counselling Survey

This is an invitation to take part in an online survey about exercise counselling for adults with spinal cord injury (SCI). The survey identifies counsellors’ barriers, needs and preferences related to providing and improving SCI exercise counselling. The findings will be used to develop evidence-based training modules on best practices for SCI-specific exercise counselling.

CMS Fact Sheet: No Surprises Act

CDC Updates Consumer Mask Webpage

Get your free at-⁠home COVID-⁠19 test kits to help stop the spread of COVID

The U.S. Department of Health & Human Services is offering free at-⁠home COVID-⁠19 test kits. Every home in the U.S. can soon order 4 free at-⁠home COVID-⁠19 tests. The tests will be completely free - there are no shipping costs. Tests will usually ship within 7-12 days of ordering.

Essential Information on the Covid19 Omicron Variant

Open House at New Horizons Village Dec 1

This virtual Open House will be accessible via Zoom on December 1, 2021 via Zoom.  To register please contact Info@NHVillage.org or (860) 673-8893.

Medicare Open Enrollment 2021 - Oct 15 - Dec 7

Time to review your Medicare coverage and decide on the best options for 2022!

A Virtual Town Hall with U.S. Senator Richard Blumenthal

November 5 | 2-3PM EDT

Topics will include:

• Medicare Updates and Concerns
• Congress/Administration Priorities
• 2022 Medicare Enrollment
• Click below to regiser!

CARP 2021 Rowing & Kayaking season is here!

Connecticut Adaptive Rowing Program (CARP) is now taking applications for the 2021 rowing season. This summer CARP will plan to offer the Wednesday evening rowing from 5-7pm, starting June 9th and Saturdays for Veterans/Military Service Members rowing & kayaking lessons from 930-1130AM, starting June 19th. Click below for more information and to download necessary documents.

HHS Launches Hotline to Improve Access to COVID-19 Vaccines for People with Disabilities

Today, U.S. Health and Human Services (HHS) announces the launch of a first-of-its-kind national hotline to connect people with disabilities to information and services to improve access to COVID-19 vaccines.

SILC Seeks New Board Members

CONNECTICUT STATE INDEPENDENT LIVING COUNCIL (CT SILC) is a federally mandated planning council based on the philosophy of independent living. The primary purpose of the SILC is to develop a three-year state plan that determines the allocation of independent living federal funds for services and projects that are designed to remove barriers to independent living. Click below for more information and to download the SILC Board Application:

A Research Study on COVID-19 and Disabilities

Study on the Impact of COVID-19 on People with Disabilities Self-Directing Home and Community-Based Services Brandeis University is conducting a study to learn about the experiences of people receiving home- and community-based services and self-directing those services.

Knowledge in Motion WebCast: Spinal Stimulation for Individuals with Paraplegia

Join us on Wednesday, April 21, 2021 6:30-8:00 PM EST for a live webcast on Spinal Stimulation for Individuals with Paraplegia, hosted by Lisa A. Beck, MS, APRN, CNS, CRRN and Clinical Nurse Specialist Megan Gill, PT, DPT, NCS.

This presentation will emphasize current spinal stimulation technologies available in clinical research laboratories around the world. 

Tadpole nerve regeneration capacity provides clue to treating spinal cord injury

Nagoya University researchers have identified a gene that plays a crucial role in regenerating neurons of African clawed frog tadpoles, which has an unusually high capacity for nerve regeneration.

NASCIC releases COVID-19 Whitepaper for evidence-based info

The COVID-19 pandemic has had a significant impact on the SCI community this past year. In order to keep our community informed, NASCIC has taken the initiative to put together a white paper of all current evidence-based information and knowledge about COVID-19 related to those living with SCI. 

We mourn the passing of Travis Roy (1975 to 2020): Hockey Player, Inspiration, Friend

We are saddened to share news of passing of Travis Roy. #travisroy Travis participated in many Connecticut events and supported our members with his foundation. Dedicated to improving the lives of those with a spinal cord injury, Travis was a passionate speaker and supporter of inclusion for all people with a disability.

State of CT launches ABLE CT program for individuals living with disabilities

DDS is excited to announce that the state of Connecticut and State Treasurer Wooden is launching the Connecticut Achieving a Better Life Experience Savings Program (ABLE CT) for individuals living with disabilities.

The CT Cross Disability Lifespan Alliance

Connecticut Developmental Disability Network and the State Independent Living Council joined together to form, and then support, the CT Cross Disability Lifespan Alliance. This Alliance of parents, self-advocates and providers meets monthly to address issues affecting people with disabilities in CT. Click the link below to view the video:

United Spinal offering 5 free COVID-19 masks

United Spinal Association is pleased to offer 5 cloth masks per person while supplies last. Please complete the form and review the information below about the masks provided by the Department of Health & Human Services. Masks should arrive within 2-4 weeks.

Knowledge in Motion WebCast: Increasing Signal to Noise Ratio in the Spinal Cord

Join us on Thursday, August 20, 2020 6:30-8:00 PM EST for a live webcast presented by Dr. Amanda Zimmerman, PhD. During this seminar, Dr. Zimmerman will discuss how the inhibitory/excitatory balance in the spinal cord is critical to both movement and sensation, and how it is disrupted after SCI.

Upcoming Election Coverage

We've gathered resources and videos from the American Association of People with Disabilities (AAPD), Vote for Access and others to help provide vital information and guidelines for the upcoming 2020 elections.  Click below to visit our Upcoming Election Coverage page. 

Online Event: Mindfulness and Resilience Tips for People with SCI

Building Resilience & Mindfulness for Challenging Times - Wednesday April 8, 2020 3:00 - 4:00 PM EDT

with Mary-Jo Fetterly, Adaptive Yoga Pioneer

Please join a welcoming community of peers with spinal cord injury and partners as we learn and practice mindfulness and resilience techniques to help us face our challenging, uncertain times.We will be guided by Mary-Jo Fetterly, pioneer in the field of adaptive yoga and mindfulness study.

211 of CT: Info and Resources for Communities during Covid-19

2-1-1 Connecticut's new online resource guide can help communities #LiveUnited! Staying connected to coronavirus-related information and available help can be challenging. Information is changing rapidly, families and businesses are struggling, and some traditional services are not currently operating.

Hand Hygiene for People with Spinal Cord Injuries

This advice is meant to help prevent the spread of the COVID-19 pandemic by providing basic hand hygiene guidelines for individuals with Spinal Cord Injuries. Certain supplies may be limited but you can still protect yourself and prevent infection using the cleaning products you have; soap and water is always better than nothing.

Exploring Timeliness of Cancer Diagnosis in Persons with Physical Disability

We are interested in looking at health care experiences of people who have difficulties with movement or have a mobility disability and who later in life develop cancer.

Coronavirus COVID-19 and Disabilities

Get the latest information and guidelines for the Coronavirus and disabilities at our Coronavirus COVID 19 Information Center.

11th Annual Twilight Gala Postponed due to Coronavirus concerns

Due to the concern regarding the spread of coronavirus, the Spinal Cord Injury Association of Connecticut is following the State of Connecticut’s lead in limiting large gatherings of people. We made the decision to postpone the Saturday, March 14, 2020 Twilight Gala.  While we are grateful for all your support and truly enjoy celebrating with you, we believe in safety first regarding the health of our community.

We will be in touch once we have additional information to share.  Please check back to our website at

Seating and Mobility Services at Gaylord Specialty Care

Jillian Cacopardo, MPT, ATP/SMS, is the Clinical Program Coordinator for Wheelchair Assessment Services a provider of complex medical care and rehabilitative services At Gaylord Specialty Healthcare located in Wallingford, Connecticut.  She worked as a physical therapist specializing in inpatient rehabilitation prior to focusing on seating and wheeled mobility.  She received her Bachelor of Health Science and her Master’s Degree in Physical Therapy from Quinnipiac University. (Photo courtesy of Kim Thompson)

Permobil Tailgate at Kinsmen Brewery - October 10th

Please join us at Kinsmen Brewery for a PERMOBIL TAILGATE! October 10 form 4 - 7 pm. Our truck and trailer are stocked with product, media, SWAG, and corn hole! This great location will reserve an indoor area for fun and food afterwards as well! Come check out our product and celebrate having only 1 more day to the work week with Permobil!

Rehab service helps people in CT with challenges obtain driver’s license

WATERTOWN, Conn. (WTNH) – Getting behind the wheel of a vehicle is challenging for many people born with a medical condition or experience a life-altering change, such as a head injury. 

Adaptive Ballroom Dancing Workshop August 17th

Join Andrea Resnisky, dance instructor at the Fred Astaire Dance Studios of West Hartford CT on Saturday August 17, 2019 at 2-3:30pm for a free 90 minute workshop. Andrea holds a bachelor’s degree in Recreational Therapy from Southern Connecticut State University and received two certifications in Para Dance at the Fred Astaire Dance Studios in Bloomfield Hills Michigan. She looks forward to starting a Dance Mobility program here in CT.

Mt Sinai Rehab13th Annual Picnic on the CT River - Aug 21st

Wednesday, August 21st 2019 at 5:00- 7:00 pm - Jaycees Community Boathouse at Riverside Park, 20 Leibert Road, Hartford

Annual picnic is open to all persons with Spinal Cord Injury, Limb Loss, Stroke Survivors, CARP Members, and their family members. Picnic will take place in front of boathouse, near river.

Please RSVP to Paige @ (860)714-2421/E-mail pmccullo@THealthofNE.org by Monday, August 19th with number of individuals planning to attend and item you wish to contribute

United Spinal Association Picnic - Gaylord Hospital August 28

Come and join us for some good food and a discussion about the United Spinal Association! Family and friends welcome! Please note the change in location!!! Join us on Facebook Live by searching for: “Spinal Cord Injury Support Group at Gaylord Hospital”

When: Wednesday August 28th, at 4:30 pm

Where: Roncari Gym (Jackson Building) at Gaylord Hospital 50 Gaylord Farm Road, Wallingford, CT

35,000 Private Home Care Workers to Have Contact Information Made Public in State Regulatory Push

A bill awaiting a potential vote by the state legislature would force private homemaker companion agencies to submit all employee contact information to the state government, which would then be publicly available, affecting up to 35,000 employees in Connecticut’s home care industry, according to the Office of Fiscal Analysis.

16-year-old helps man in wheelchair get home before severe weather strikes

Read this inspirational story of a teenager assisting someone in a wheelchair get safely home before a storm. What would you do in that situation? Click below to go to this article, and also to read United Spinal Association’s Disability Etiquette publication for information on how to best assist someone that may be in need:

Exercise and Fitness after Spinal Cord Injury Video Wins Silver Telly Award

National Nurses Week May 6 - 12, 2019

The Spinal Cord Injury Association of Connecticut is delighted to share in the celebration of National Nurses Week. The education and care delivered by nurses and nursing assistants helps many of our Chapter members continue to live healthy lives after their spinal cord injury or disorder diagnosis.

2019 SCIACT Milford Bar Crawl - June 22

Joins us for the Downtown Milford Super Heros vs. Villains Bar Crawl on June 22nd.  Wear your favorite Super Hero Tee shirts and costumes and get drink specials at all 4 bars.  Click below for details:

May 2019 Opportunities to Row and Ride

The Spinal Cord Informational Series of Mount SInai Rehab presents 2 great opportunities to get involved in the outdoors:

1. Adaptive Cycle Clinic May 11, 2019

2. CT Adaptive Rowing Program (CARP) Orientation May 29, 2019

Click below for more details

Webinar: Spinal Cord Injury Rehabilitation Tips and Strategies

Thursday, May 16, 2019 | 3:00 PM - 4:00 PM EDT

This webinar will introduce you to the key elements of rehabilitation therapy, the rehab guidelines for people with SCI, and resources to stay healthy and/or extend rehab once you go home.Presenters: Jennifer French, MBA, Kimberly Anderson-Erisman, Ph. D
 

A study in chronic pain: are you eligible?

Do you or someone you know suffer from chronic pain after a spinal cord injury? Researchers at the University of Washington are starting a new research study for chronic pain after spinal cord injury. Please click below for more about this study and how to participate.

Knowledge in Motion WebCast BrainGate Technology: An Emerging Innovation to Restore Arm and Hand Fun

Join us on Thursday, May 16, 2019 6:30-8:00 PM EST for a live webcast presented by Leigh Hochberg, MD, PhD. Dr. Hochberg will explore BrainGate Technology: An Emerging Innovation to Restore Arm and Hand Function

Connecticut State Park Access for Persons with Disabilities

The Department of Energy & Environmental Protection is working to ensure that all visitors have access to the many outdoor recreational opportunities available at Connecticut State Parks and Forests.

Gaylord SCI Support Group - Featuring UHart PT Students

Come and join us for a discussion with UHart PT student! Family and friends welcome! Join us on Facebook Live by searching for: “Spinal Cord Injury Support Group At Gaylord Hospital”

When: Wednesday April 24th, at 4:30 pm
Where: Inpatient Gym (Luscomb Building) at Gaylord

Wheelchair Assessment: Bringing Technologies and Users Together

Gaylord Specialty Healthcare, a provider of medically complex care and rehabilitative services in Wallingford, Conn., evaluates hundreds of its own patients and individuals from throughout the community each year through its in-house Wheelchair Assessment Services

Zappos Adaptive and Runway of Dreams Fashion Show

March 27, 2019 - Las Vegas, Nevada. & Live Streaming.

Zappos Adaptive and the Runway of Dreams Foundation are partnering to start a revolution by hosting the first, nationally live-streamed fashion event for people with disabilities, their families, friends, teachers, therapists, leaders and innovators for an unforgettable night to celebrate inclusion and experience the transformation taking place in the fashion industry. If you can’t come to Vegas, the party will come to you! Join in through YouTube Live, or the livestream link on zappos.com/adaptive/fashionshow.

Barbie introduces dolls with wheelchairs and prosthetic limbs

(CNN)Barbie's new looks could help fight the stigma around physical disabilities. In June, Barbie will debut a doll with a prosthetic leg and another that comes with a wheelchair. The new dolls are part of Mattel's 2019 Barbie Fashionistas line, which aims to offer kids more diverse representations of beauty.

Take a Disability & Transportation Survey from Virginia Tech

Researchers at Virginia Tech are studying the experiences of people with disabilities as they travel and navigate, so we can better understand the challenges they face.

Full Body Winter Coat Designed for Wheelchair Users!

Designed specifically for wheelchairs and strollers and made of quality water-resistant Batik fabric, this stylish yet functional winter bodycoat comes with easily accessible nylon-reinforced strap openings, a hooded collar, a foot flap for easy foot position access and easy-to-use zippered enclosures.

New O’Hare restroom more accessible than any other in U.S., officials say

A new, accessible bathroom opened last month inside Terminal 2 at O'Hare International Airport, the first of its kind in the country, according to the city's recently formed Airport Advisory Committee. | Chicago Department of Aviation and Mayor's Office for People with Disabilities

ABC's 'Speechless' Calls for Abilities Expo

The Abilities Expo was contacted by Speechless when a plot line was conceived that included [the character] Maya going to "an Abilities Expo type" event, because she has invented some wheelchair-friendly apparel.

Casting for Print Shoot For a New Razor...

The designers of a new razor that will enable a caregiver to easily shave someone who is unable to do it themselves would like to use real people with limited upper body mobility to film a print campaign for their product.

Honoring our Veterans: Tim Fournier & Steve Emt

In honor of Veteran's Day, Hebron Elementary School hosted Tim Fournier and Steve Emt. They are both Veterans that served our country in military service. They spoke to students and staff about what it means to be a Veteran and the importance of honoring those who have served. The NSCIA CT Chapter sincerely thanks Tim and Steve for their service and sacrifice!
 

Gaylord SCI Support Group Thanksgiving Dinner 11/14/2018

Come and join us for our annual thanksgiving dinner on November 14, 2018 at 4:30 pm  at Gaylord's Roncari Gym! A lecture will be presented along with dinner. Please RSVP if panning to attend.  Click on the link below for more details.

New Horizons Art Celebration Dec 2 featuring Blind Boys of Alabama

Roll a day in someone else’s chair - 6th Annual Walk-n-Roll

Time to get out and vote - make it count for disabilities!

Election Day is just 2 weeks away! Now that you are registered, have made your plan to vote? Have educated yourself about the issues and candidates? Now, it’s time to help others do their civic duty.

Knowledge in Motion WebCast: Shaping the Spinal Cord Injury Research Landscape

Join us on Thursday, November 8, 2018 6:30 - 8:00 pm Eastern Time for a live webcast presented by Chloe Slocum, MD, MPH. Dr. Slocum will explore historical perspectives in spinal cord injury (SCI) research and examine how consumer feedback and input has been integral to the current research landscape. 

Learn more about The NEAT Center at Oak Hill

Date: Tuesday, October 30, 2018 (12:00pm – 1:00pm)

The NEAT Center at Oak Hill focuses on empowering individuals of all ages and abilities through the use of Assistive Technology supports and services.Join us in this webinar, as we provide an overview of our services including the benefits of a NEAT Membership.

Electrical implant helps paralyzed patients walk again

WASHINGTON — Three people whose legs were paralyzed for years can stand and take steps again thanks to an electrical implant that zaps the injured spinal cord — along with months of intense rehab, researchers reported Monday.

New Horizons Wellness Fair Oct 20 2018

Register : NHVillage.org or 860-673-8893

Location: New Horizons Village, 37 Bliss Memorial Road, Unionville, CT 06085

The Wellness Festival is FREE and will include: complimentary snacks, healthy eating on a budget, art therapy, adaptive sports activities, free health screenings, prizes

Paralyzed During Vacation: 'I'm Happier Than I've Ever Been'

Two years after the accident, there is nothing that slows Jill Harpin down, and she reveals that she’s actually happier now than she was before the fall.

Report Disabled Parking Abuse with the Parking Mobility App

When you see a vehicle parked illegally, simply launch Parking Mobility, take three photos and tap submit. App administrators will then inform the city’s officials, who frequently ticket the vehicle’s owner.

Mount Sinai Rehab Pot-luck Picnic Aug 15

Wednesday, August 15th 2018 at 5:00- 7:00 pm Come see the CT Adaptive Rowing Program in Action! This picnic is open to all persons with Spinal Cord Injury, Limb Loss, Stroke Survivors, CARP Members, and their family members. Picnic will take place in front of boathouse, near river.

Quinnipiac University's 6th Annual Walk & Roll 5K

The 6th Annual Walk and Roll 5k to benefit spinal cord injury will be held at Quinnipiac University's North Haven Campus on October 20, 2018! There will be raffles, vendors, food and tons of fun for everyone! Proceeds will be donated to the Connecticut chapter of the United Spinal Association. Click below for more information & to register!

Check out United Spinal's New Mobility Magazine

As the official publication of United Spinal Association, New Mobility advances the organization’s mission to improve quality of life of people with spinal cord injuries and disorders by highlighting member opportunities for further education, peer support and community involvement. 

Our Resource Directory is Online!

The Spinal Cord Injury Association of Connecticut Resource Directory offers a vast amount of information, including: health care providers and facilities, councilors, adaptive technology, and more. This ongoing effort of the NSCIACT has over 200 pages of invaluable data and has taken years to compile and is updated periodically. Our online resource directory below can be downloaded in .PDF format.

Free Concert at New Horizon's Village: Yale School of Music

Students from the Yale School of Music will be performing at New Horizons Village on Thursday, June 21st at 1:00 - 2:00 pm. This is a free concert!  Please click below for more information.

Hospital for Special Care Cord Connections: Adapted Vehicles June 21

Hospital for Special Care Cord Connections: Travel Considerations May 17th

On May 17th, 2018, Hospital for Special Care's monthly Spinal Cord Injury Resource Group, "Cord Connections" presents a discussion on Travel Considerations with host Sarah Barnes, PT, DPT.  Please click below for more details.

All about the Ekso at Gaylord Specialty Healthcare, April 26

Join us Thursday, April 26 for an exciting, interactive program on robotic exoskeletons, facilitated by Gaylord Specialty Healthcare’s Ekso trained physical therapists. Enjoy hearty refreshments while watching a live demonstration of Ekso Bionics’ wearable exoskeleton, EksoGT™

Knowledge in Motion WebCast: Aging with Spinal Cord Injury

Join us for a live webcast on Thursday, April 19, 6:30 - 8:00 pm. This lecture will present data from the Swedish Aging with Spinal Cord Injury Study (SASCIS), providing insight into topics such as secondary health conditions, activity limitations, psychological resources, participation in leisure time physical activity and life satisfaction in individuals with long-term SCI. Research findings will be translated into take-home points on how to live well with SCI across the lifespan.

Mt Sinai SCI & Amputee Info Series: Featuring Paralympian Steve Emt

Join us on Aptil 18 at Margarita's Restaurant in East Hartford for the Mount Sinai Rehabilitation Hospital Spinal Cord Injury & Amputee Informational Series. Presenters will be Paralympian Curler Stevew Emt and Melissa Genovese, LMT, Massage Therapy. RSVP to Paige McCullough-Casciano @ (860)714-2421 or pmccullo@stfranciscare.org by Tuesday, April 17, 2018.

UConn Says No To Wheelchair Basketball Team In Fall 2018

General Assembly approves raises for home-care workers

SCI Informational Group of Bristol - 2 March Meetings

Join us March 15th & March 29th, 2018 at Chapter 126 in Bristol CT for 2 special March meetings, including an Open House for new Chapter 126 members and a presentation by the Office of the Healthcare Advocate (OHA).

SCI Support Group of New London Information Series

On Saturday, March 3rd from 11:00 AM – 12:30 PM, The SCI Support & Information Group of New London County will present information on the Disabilities Network of Eastern CT, Inc. The group will meet at  Backus Hospital, 326 Washington Street, Norwich, CT

2018 Twilight Gala - Coming March 10, 2018

The Spinal Cord Injury Association of Connecticut (SCIACT), Will host the 9th Annual Twilight Gala on Saturday March 10, 2018.

This year's event, as in past years, will be held at the Aqua Turf Clubin Plantsville, CT from 6:30 pm until Midnight, featuring dinner, dancing and auction.

Free Concert at New Horizon's Village: Hartt Brass Ensemble

A Brass Ensemble from the Hartt School of the University of Hartford will be performing at New Horizons Village on Friday, April 6th at 2:30pm. Repetoire will be music of Brahms, Beethoven, Dvorka and more!  

Paralyzed Ex-UConn Basketball Player Now a Curling Paralympian

It took a few years, but next month, Steve Emt, a former UConn basketball player who was paralyzed in an autom accident, will compete in the Paralympic Games in South Korea as the vice skip of the United States curling team.

Mount Sinai Rehab SCI Info Series: Paint Night 2/21/2018

Join us on February 21 4:30 - 6:30 pm at Mount Sinai Rehabilitation Hospital for a Paint Night - No experience necessary!  This is part of the on-going Mount SInai Rehab Spinal Cord Injury Series.

Gaylord SCI Support Group: Pressure Relief Techniques & Alternate Funding

Webinar: Innovative Surgical Strategies to Restore Movement and Reduce Spasticity after SCI

Thursday, January 25, 2018 6:30-8:00 PM Eastern Time - presented by Justin Brown, MD Director, Neurosurgery Paralysis Center Massachusetts General Hospital. 

Webinar:Adaptive Automotive Equipment Options for SCI

Wednesday, January 24, 2018 | 2:30 PM - 3:30 PM EST: This webinar will highlight a range of topics pertaining to adaptive automotive equipment for personal use and information for allied health care practitioners and other stakeholders in understanding and advocating for individuals seeking automotive vehicle modification solutions. In addition, it will educate consumers and caregivers about the unique process involved in evaluating and purchasing appropriate automotive options to fit specific accessibility needs. 

Take Survey on Intermittent Catheterization for Chance to Win $500 Gift Card

Here’s an opportunity to take part in United Spinal's comprehensive survey on bladder voiding for adults (age 18 and older) who use intermittent catheterization as a primary means of bladder management. The Continence and Catheterization Impact Assessment Survey will take 20 minutes to complete and will provide insight into the quality of life, health, and product needs of people requiring this method of bladder voiding. At the close of the survey a random drawing will be held and one lucky winner voluntarily providing an email address will be awarded a $500.00 gift card.

Sports Academy senior organizes wheelchair rugby tournament

HARTFORD, CT (WFSB) - The Second Annual Wheelchair Rugby Tournament this year went off without a hitch thanks to a senior at the Sport and Medical Science Academy, Lyndsey Broxton, who organized the event.

Wheelchair Basketball Clinic Raises Hopes For Intercollegiate Program At UConn

UCONN hosted a wheelchair basketball clinic that welcomed prospective athletes from the student body, future students, and able-bodied UConn students who wanted to learn more about the sport.

Backus SCI Info Group 12/2: Exciting New therapies w/ ReNetx

On Saturday December 2 at Backus Hospital in Norwich, CT, a representative from ReNetX, a Connecticut based company will be here to discuss the discovery of proteins that limit nerve fiber growth after injury. This may be the basis of a therapeutic approach that offers real hope to people living with a chronic spinal cord injury.

Autonomic Dysreflexia: Tattoos & Pierecings - Nov 16

Join us on November 16 3:30 - 5:00 pm at Hospital for Special Care's Cord Connections meeting for a discussion on "Autonomic Dysreflexia –Tattoos and Piercings". 

Chair Yoga at Mt Sinai Starts Nov 1

Comcast’s 100 Days Until the Olympics Event November 28th

Join us on November 28 at New Horizons Village, Unionville, CT. The event will include a presentation by Comcast's Vice President of Accessibility Tom Wlodkowski, as well as product demos on Comcast’s free accessible products and features. All participants will receive Comcast’s latest remote control and there will also be giveaway prizes!

Quinnipiac University's 5th Annual Walk & Roll 5K

Think Harvey. Now, think about Harvey in a wheelchair

Wellness Festival for Individuals with Disabilities & Families

On October 7th, Cigna and New Horrizons Village present a Wellness Festival for individuals with physical disabilities and their families, featuring speakers, food, health screenings and more! Admission is free and all are welcome!

Lecture & Webcast: Intermittent low oxygen therapy (iLOT) October 5, 2017

Spinal cord injury (SCI) affects connections between the brain and spinal cord. One promising technology is through breathing modest bouts of low oxygen—called “intermittent low oxygen therapy” or iLOT. Join host Randy Trumbower, PT, PHD on October 5 for this free and informative lecture and webcast.

Scientists May Have Discovered How Spinal Injuries Are Repaired On a Cellular Level

Scientists have learned more about how a new surgical technique works to reconnect the spinal cord with sensory neurons after traumatic spinal injuries. A rat study suggests that this procedure encourages new growth from spinal neurons, and if this is how it works in humans, it could be used to repair other kinds of injuries, including severed spinal cords.

Danbury-area spinal injury support group forming

Two local Danbury residents who suffered spinal cord injuries when they were teenagers have started a new support group. Paul Pateracki and Lynn Simoneau met by chance in the parking lot of a grocery store several years ago. After talking for 45 minutes, they came up with the idea of the support group, since neither knew of one locally.

Yale Scientist Aiming To Reverse Spinal Cord Injuries

New Haven -  A Yale neurology and neuroscience professor who hopes to regrow neurons in patients with spinal cord injuries has secured enough funding for a human clinical trial.

SCI Support Group of New London County is forming

On August 5th, 2017 from 11:00 am - 1:00 pm there will be an introductory meeting about the SCIACT. The grant application will be reviewed, peer program and other events will be presented. Come and get involved in determining the topics for future meetings. 

Community Needs Survey for past & present patients

Take Veteran Sailing - September 10, 2017

Annually on the Sunday closest to September 11, United Spinal Association teams up with Sail Connecticut Access to provide of day of sailing, adventure and camaraderie to local veterans and disabled veterans. More info to come...

Adaptive Water Skiing Event August 21, 2017

Join us for a day of adaptive water skiing on Moday August 21, 2017 on Lake Zoar, Sandy Hook, CT. Presented by Leaps of Faith Adaptive Skiiers and SCIA CT.  Luch will be provided and everybody skis for FREE.

SCI Awareness Day in Massachusetts - September 13, 2017

For our members in the state of Massachusetts: Join us at the State House for the Annual SCI Awareness Month Proclamation and Presentation - SPINAL CORD INJURY AWARENESS DAY WEDNESDAY, SEPTEMBER 13, 2017, 12:00-1:00 PM. MASSACHUSETTS STATE HOUSE, HALL OF FLAGS, GREAT HALL

Save the Date! SCIACT Annual Meeting and Membership Picnic June 17, 2017

Join us at Gaylord Hospital's Chauncey Pavillion on June 17 from 12 - 2:30. This is a great change to connect with old friends and make new ones! We'll discuass Chapter business and have some great topics and speakers.  Food provided by Little Mark's Big Barbeque.

Webcast: Complementary & Integrative Healthcare (CIH) for People with SCI

Join this free online webcast: Thursday, June 22, 2017 6:30-8:00 PM Eastern Time. Presented by Jennifer Coker, MPH Rocky Mountain Regional SCI Model System Craig Hospital, Denver, CO.

Across Disability Support Group: Securing your Financial Stability

Join us on 6:00 pm May 25th at Chapter 126 in Bristol CT for the Across Disability Support and Informational Group. The topic will be Understanding tax benefits and improving your financial future for people with disabilities, with guest speaker Hiram Gonzalez of Gonzolez Associates.

Webinar: The Disability Integration Act & Why it Matters to You

Tuesday, May 23, 2017 | 1:00 PM - 2:00 PM EDT

This webinar will provide details about the Disability Integration Act, a bill that, if passed, would create an absolute right for all people with disabilities to live in the community instead of being forced into institutional settings, such as nursing homes. Participants will learn the specifics of the bill, and how this law would benefit people with spinal cord disabilities by ensuring services and supports needed are provided in a person's home.
 

Interested in Adaptive Rowing?

Then Learn to Row with Us! The Connecticut Adaptive Rowing Program (CARP) is designed to serve a wide variety of recreational and competitive rowing enthusiasts with physical disabilities and/or visual impairments and offers and orientation scheduled for for May 24, 2017 from 5-6:30 p.m. at Mount Sinai Rehabilitation Hospital. 

Join us at our new Across Disability Support Group in Bristol, CT on April 27

Independent living centers at risk from state, federal budget cuts

The state’s centers for independent living, already reeling from deep cuts, appealed Tuesday for legislators to reject a proposal to eliminate all state funding for their facilities. The five centers, first established under state law in 1988, provide a wide array of training, counseling and referral services to thousands of residents with physical and mental disabilities, the elderly and the poor.

Webcast: What Can Robotics Do for Individuals with Spinal Cord Injury?

SCI Support Group: Adaptive Sports with Gaylord Sports Assoc. March 29, 2017

Come and join us for a discussion about adaptive sports and try out an adaptive cycle, quad rugby chair and adaptive kayak. Stay and chat with members of the SCI community and the Gaylord Sports Association.

Roll on Capitol Hill is coming June 11 - 14, 2017!

Roll on Capitol Hill is United Spinal Association's signature policy event which highlights key advocacy priorities for its membership and the broader disability community to ensure that legislators include wheelchair users and all people with disabilities in policy debates on Capitol Hill. Here is the information you need if you are interested in applying to attend this year's event.  Deadlines for registration are fast approaching, so click below for more information.

A SCIACT Success Story: Meet Nicole

Meet Nicole, and her inspiring story of strength and determination after facing a catastrophic spinal cord injury.

Gaylord presents the Adaptive Sports Fest on Sunday, April 9th

Learn about dozens of sports at the annual Adaptive Sports Fest on Sunday, April 9th! The Gaylord Sports Association and the Institute for Adaptive Sports and Inclusive Recreation at Southern Connecticut State University are hosting the second annual Adaptive Sports Fest. This is a multi-sport event intended to introduce adaptive sports to individuals of all abilities through clinics, demonstrations, and an expo area.

Adaptive Rock Climbing Clinic 3/25/2017

Join the Gaylord Hospital Sports Association, along with Ascent Climbing and Prime Climb for our annual Adaptive Rock Climbing Clinic! This is a great opportunity to try indoor rock climbing alongside professional and experienced climbers.

Webinar: Aids for enhancing the intimate experience for adults with SCI 2/21/2017

WARNING: This webinar contains subject matter that may not be appropriate for some audiences or people under 21. Reader discretion is advised.

This webinar will provide an overview of available aids and novelties and how you can use them to enhance your intimate experiences after sustaining a spinal cord injury (SCI). 

Ed Roberts activist Google Doodle honors leader of the disability rights movement

Webinar 2/2/2017: Addressing Secondary Health Complications of SCI Through Nutrition

The SCIACT, a Chapter of United Spinal is Awarded more than $25,000

The Spinal Cord Injury Association of Connecticut, a Chapter of United Spinal (SCIACT) has been awarded $26,085 from the Craig H. Neilsen Foundation. The funding will be used to increase services and education for the spinal cord injury community in Connecticut.

United Spinal's Key Advocacy Issues

With the election and intense political year having ended, the SCIACT feels it is very important to help keep members informed. There are some key advocacy issues United Spinal feels are impact-

ing and will impact the spinal cord injury community in the near future. The next selections are issues that United Spinal advocates for at the national level. At the end of each selection are ways you can contact your local representative and discuss these issues. Please take the time to read and contact us if you have any questions or concerns.

Faith & Spinal Cord Injury. Exploring Faith on Wheels

Faith. It’s that quiet inner voice that speaks to you on the good days and especially on the bad. Sometimes it’s the one thing that can calm you when nothing else will, and for some, it’s the difference between being able to move on or carry on, or not.

CT Classic Wheelchair Rugby Tournament

Informational Meeting: Wound Prevention with Dr. Aziz Benbrahim

On January 4, 2017, as part of our new support group series Dr. Benbrahim from Hartford Healthcare will discuss wound prevention at Chapter 126 in Britstol, CT.  Come and listen to this valuable and informational discussion.

SCI Lecture & Webcast Series: Living Healthy with Spinal Cord Injury

Join us for the first Knowledge in Motion webinar of 2017 on January 11. This lecture will discuss how spinal cord injury can impact many aspects of an individual’s life, in addition to impacting his or her family, friends, and community. 

Mount Sinai Rehabilitation Hospital Spinal Cord Injury Informational Series - 1/18/17

Webinar: Helping People with Disabilities Get the Healthcare Coverage They Need - 1/18/17

Dial in on , January 18, 2017 @ 3:00 PM EST to hear about the benefits the Affordable Care Act has for people with disabilities. Along with a general overview of the resources available through the National Disability Navigator Resource Collaborative (NDNRC), the presentation will focus on critical questions regarding enrolling in the right healthcare plans. Presenter: Karl D. Cooper.

First paralyzed human treated with stem cells has now regained his upper body movement

This is the story of Kristopher Boesen, who was offered the opportunity to go through a potentially life-changing procedure involving stem cells, which have the capability to repair injured nervous tissue through replacement of damaged cells.

What Are the Candidates’ Views on Disability Issues?

Webinar: Pain and Spasticity Management Without Pills 10/13/2016

Chronic pain and severe spasticity are common among people living with spinal cord injuries and disorders (SCI/D). The primary treatment strategy is pharmaceuticals, yet those come with many side effects with only a marginal degree of relief. Alternative medicine and coping strategies are also useful to some individuals. Learn about the latest and how they may help you.

The 2016 Battle For Hope - 11/12/2016

The 2016 Battle For Hope - 11/12/2016

Moving with H.O.P.E. presents an exciting fundraising event! House of Glory Wrestling (www.hogwrestling.net) looks to bring an exciting and dynamic live performance on 11/12/2016 to the Insports Center in Trumbull CT.

SCI Support Group: Wheelchair Basketball and Quad Rugby September 28

Learn about the adaptive sports of Quad Rugby and Wheelchair Basketball from Joe Stone (a player on Connecticut’s Quad Rugby team: the Jammers) and Carlos Quiles (a player on Connecticut’s Wheelchair Basketball team: the Spokebenders)

2016 Candidates’ Forum on Disability Issues October 5th

Join Emmy award winning journalist Diane Smith as she moderates this year's forum on October 5th at the Meriden Four Points Sheraton.

Join us for a Special Presentation by Travis Roy

Join us on September 21, 2016 from 4:30 - 6:30 pm for  SCI education, speaking presentation & book signing. Travis will inspire, motivate and move you. And, his story will likely stay with you forever.

Take a Veteran Sailing - Sept 11, 2016

Annually on the Sunday closest to September 11, United Spinal Association teams up with Sail Connecticut Access to provide of day of sailing, adventure and camaraderie to local veterans and disabled veterans. Click below to watch a video of this great day.

Milford "Bar Crawl" Raises Money for SCIACT

The 7th Annual Milford Bar Crawl was held on Saturday July 9, 2016 at 1pm, making the rounds to local establishments like Citrus, Archie Moores, Eli's, and Stonebridge where many still stayed well into the night. Participants raised not only SCI awareness but $1750 for the United Spinal Association CT Chapter a well! Click for photos of this year's event.

Annual Meeting Recap: Standing Wheelchairs!

On June 18, 2016 at our Annual Meeting & Picnic, the Standing Company presented to the chapter the benefits of owning a standing wheelchair. Standing Wheelchair Specialist Scott Liesch presented to more than 50 members on how to purchase and benefits from standing. Chapter President Bill Mancini also reviewed with the membership the 2015-2016 fiscal year and the importance of getting involved.

CTSCIA Annual Meeting & Picnic June 18, 2016

This an opportunity to connect to Connecticut Spinal Cord Injury Association, A Chapter of United Spinal (CTSCIA) board members and old friends. The CTSCIA will review the past year and discuss some of the plans it has for the up and coming year. This gives you an opportunity to voice your ideas and thoughts about how SCI services are going in Connecticut.*

People with SCI Wanted for Rowing-Based Exercise Study

If you are between the ages of 18 and 40, have become spinal cord injured within the last three to twelve months, and have some arm strength, you may be eligible for a new exercise-focused research study, based at Spaulding Hospital Cambridge.  

Mt. Sinai SCI Info Series: FreedomTrax

Join us on Wednesday, May 18, 2016, 4:30 – 6:30 pm for a demonstration by Tim Fournier & Freedom Trax, on the exciting and innovative FreedomTrax Mobility system.

Mt. Sinai Adaptive Cycling Clinic & Ride

Webinar: Solutions for Bowel Management

Please join us for this enlightening webinar, Thursday, May 5, 2016 | 3:00 PM - 4:00 PM EDT.

Learn about what changes occur for people living with spinal cord injury, how to manage a bowel routine and solutions to help you manage it rather than the bowel managing you. This webinar will cover best practices, new techniques and what research is being conducting. Attendees will also receive resources to learn more.
 

Pictures from the 2016 Twilight Gala

The SCIACT held it's 7th annual Twilight Gala & Auction on March 12 at the Aquaturf Club in Plainville, CT, featuring Fox 61's Tim Lammers as MC and inspirational special guest speaker pro boxer  Boyd "Rainmaker" Melson. The event provides vital funding for the SCIACT's many benificial programs, including Quality of Life Grants, Peer Assistance and Support Groups. Click here for a photo gallery of this year's event.

Webinar: Your Pathway to Employment–Benefits and Incentives for Working with Spinal Cord Injury

Join us on Wed, Apr 13, 2016 2:00 PM - 3:00 PM EDT. This webinar will explore various work incentive programs available to help you return to work. We will have an expert in Social Security Disability Work Incentives, who can explain how people with spinal cord injuries can manage their benefits and return to work. 

Mount Sinai SCI Info Series Evening of Painting

Posted January 2016

January 20, 2016 4:30– 6:30 p.m.: An Evening of Painting...Please Join us! No experience necessary... All supplies and a light dinner will provided.

Hollister offers free catheters to United Spinal & its affiliates

January 2016

A generous donation from Hollister to United Spinal Association and its affiliates allowed the CT Spinal Cord Injury Association to distribute two different brands of catheters to local recipients free of charge.

Time to Get Your Gala On!

The Spinal Cord Injury Association of Connecticut (CTSCIA) will host the 7th Annual Twilight Gala on Saturday March 12, 2016.

Hospital for Special Care SCI Info group Holiday Gathering

Posted October 2015

Where: Hospital for Special Care
When: Tuesday, December 15th, 2015, 3:30 – 5:00 pm

Mount Sinai SCI Info Series Holiday Gathering

Posted Dec 2015

When: Wednesday, December 16^th from 4:30-7pm
Where: Mount Sinai Rehabilitation Hospital We will be celebrating the season with music and friends!! Food from Zocco’s will be provided. We request that everyone sign up to bring an appetizer or dessert to share.    

SCI Support Group: Traveling After a SCI

Posted October 2015

The November 2015 Support Group at Hospital for Special Care focuses on your rights to accessibility, resources &  tips from experienced travelers living with a SCI

Get on the right track with Freedom Trax

Posted October 2015

Come and see this live demo fo the amazing Freedom Trax mobility unit, November 5, 2015 at Advanced Wheels in East Granby, CT.

Access Advocates “Giving You a Voice”

The mission of Access Advocates is to make a positive difference in the lives of people with disabilities, primarily through a professionally-supported, personal relationship with caring advocates, and to achieving the tasks of making non-compliant buildings ADA compliant, one building at a time. 

Some Questions About Social Security Benefits

ConnCord Summer 2015

Can I return to work while getting Social Security disability benefits? Yes, you can return to work while receiving Social Security disability benefits. There are special rules to help you get back to work without jeopardizing your benefits. You may be eligible for a nine month trial work period to test whether you can work.

2015 Twilight Gala…

ConnCord Summer 2015

The 2015 Twilight Gala was held at the Aqua Turf in Southington. Guest speaker was Darren Jernigan who delivered an inspirational speech about his struggles with SCI and determination to become a Tennessee State Rep. Tim Lammers from Fox CT was the emcee and Jay Harris from ESPN handled the Live Auction.

2015 Chapter Annual Picnic…

ConnCord Summer 2015

The Chapter held its Annual Picnic at Gaylord Specialty Healthcare. Boxing Champ Boyd Melson was the guest speaker. He spoke about his fight to find a cure for spinal cord injury. 

New Findings on Breathing Recovery

ConnCord Summer 2015

Recently we have had news of some major research developments from Ohio, so we asked two of our funded researchers in the city to tell us more about their work and collaborations.

Fluid or Retention: Why it Happens and Prevention…

ConnCord Summer 2015

Edema is swelling caused by the abnormal buildup of fluid in the body. The fluid collects under the skin within the tissues that are outside of the circulatory system (the system that carries blood through the body). Edema is most common in the feet and legs, but it can occur in the hands, arms, face, abdomen and around the lungs

We've Changed our Name!

The National Spinal Cord Injury Association is becoming a chapter of the United Spinal Cord Injury Association. As a member of this local chapter, you'll continue to benefit from our beneficial state-wide programs and services and can now benefit from the many fine resources offered by United Spinal Itself! Stay tuned for more information...

United Spinal's Roll on Capitol Hill

Posted Sep 24, 2015

Successful advocacy takes a concerted effort by organizations, groups, and most importantly,  you and I. Hear what our participants have to say as they share their experiences from this year’s event

Man walks again after years of paralysis

Posted Sep 24, 2015

The ability to walk has been restored following a spinal cord injury, using one's own brain power, according to research.

SCI Support Group: Exercise and Spinal Cord Injury

Gaylord Hospital welcomes Erika Ozdemirer PT, DPT, NCS and Erin Lampron, PT, MSPT, NCS as they present: “Exercise and Spinal Cord Injury” Monday August 17, 2015 at 5pm.

Hit the Beach this Summer with Sand Rider!

Don't let the fun leave you behind -- Sand Rider off-road wheelchairs allow everyone to enjoy the outdoors.

May 30: Chapter 126 presents Social Saturday

May 2015

Come mingle, enjoy refreshments, learn about home modifications and more at this free event!

A Research Study to Improve Health and Function after SCI

May 2015

My Care My Call, a phone-based intervention, aims to improve the health and function of people with SCI.

Gaylord Hosts Meeting with National Spinal Cord Injury Organizations

posted May 2015

On April 21st, NSCIA CT's sponsoring facility Gaylord Hospital hosted a meeting with the our affiliates United Spinal Association and the National Spinal Cord Injury Association.

Don't miss: Movement for Change!

posted April 2015

With honorary guest Kristen Taekman of Real Housewives of New York! May 16, 2015 6 - 11pm, at the Farmington Marriot. Sponsored by the DeFilippo Fund to Support SCI Victims in CT

3rd Annual Walk & Roll for Spinal Cord Injury

posted March 2015

We are pleased to announce our 3^rd Annual Walk -&- Roll for Spinal Cord Injury at Quinnipiac University’s North Haven campus, on April 18, 2015.

SCI Survey: What are your medical, legal, and social needs?

posted March 2015

Subramani Seetharama, MD is a local physiatrist interested in assessing the medical, legal, and social needs of community members living with spinal cord injuries (SCI). 

Dr. Bernie Siegel to Address Post Polio Group

posted March 2015

Dr. Bernie A. Siegel will address The Polio Outreach of Connecticut on Saturday, April 18, 2015, at 2 PM, at Brooker Lecture Hall, Gaylord Farm Road, Gaylord Hospital in Wallingford.

Webinar: Sexuality after Spinal Cord Injury

Posted February 2015

Thursday, February 26, 2015
6:30-8:00 PM Eastern Time  
Presented by
Marcalee Sipski Alexander, MD
Birmingham VA Medical Center - University of Alabama School of Medicine  

Time to get your Gala on!

Posted February 2015

Join us for the 6th Annual Twilight Gala - Saturday March 7, 2015. Dinner, Dancing, Auction!

Pedal for a purpose on March 29th!

Posted January 2015

Don't miss this St. Francis Care Event.

180 Medical Scholarship Program open to those with SCI

180 Medical is honored to have a scholarship program to help those with spinal cord injuries, spina bifida, transverse myelitis, neurogenic bladder, etc.

New science helps a paralyzed man move his legs for the first time in years

January 2015

Olympic Swimmer Amy Van Dyken Determined to Walk Again

Amy Van Dyken, the six-time Olympic gold medalist swimmer who became paralyzed when she severed her spinal cord in an ATV crash this summer, says she is determined to walk again.

SCI Support & Information Group: Pain Management

On December 16, 2014, the Hospital for Special Care will host a SPinal Cord Injury Support & Information Group covering: Pain Management & The Risks and Current Controversy Regarding the Use of Opiate-based Pain Medication  

Ryan Martin Foundation Wheelchair Basketball Clinic

On Saturday December 27, 2014, the Hospital for Special Care will host a Wheelchair Basketball Clinic with the Ryan Martin Foundation.

Patient, Provider & Producer: A Conversation about Medical Marijuana

Posted November 2014

Join us on November 19, 2014, at Mount Sinai Rehab to learn more about the use of medical marijuana and the state of medical marijuana use in CT. 

Looking for an Accessible Vacation Spot?

Posted November 2014

Man With Severed Spine Walks Again in 'World First'

Darek Fidyka, who was paralyzed from the waist down, is walking after undergoing an experimental procedure, offering hope to millions of people.

Check Out Chapter 126

Oak Hill's Chapter 126 Sports & Fitness center - a recreational facility designed specifically for youth and adults with disabilities, veterans, and their family and friends has just opened its doors.

Webinar: Interdisciplinary Primary Care for People with SCI

Webinar begins: Thursday, November 13, 2014
6:30 PM - 8:00 PM.

SCI Support Group Event: SCI Jeopardy!

Posted October 2014

Join us on October 21, 2014 at Hospital for Special Care in New Britain CT and Test Your Knowledge – Play SCI Jeopardy with HSC’s Colleen Miller, PT.

September is Spinal Cord Injury Awareness Month

Posted October 2014

Check out this inspirational video!

Gaylord Sports Association gears up for the Fall Season

Posted September 2014

Check out the latest Fall 2014 Sports Association Newsletter.

Chapter 126 Coming To Bristol, Connecticut

ConnCord Summer 2014

People with a spinal cord injury, be it a new injury or one sustained many years ago, may find it difficult to exercise due to physical limitations, inappropriate fitness center accessibility, lack of motivation or many other reasons. However, just as with the able-bodied population, these are merely excuses and exercise is critically important, perhaps even more so for individuals with spinal cord injuries.

SCI Model System & Congratulations

ConnCord Summer 2014

Did you know that Gaylord is one of only 14 Model Spinal Cord Injury Systems in the U.S.? As a Model System, they study the course of recovery and outcomes for SCI patients while providing comprehensive SCI rehabilitation services and conducting spinal cord research. 

5th Annual NSCIA CT Twilight Gala is a Smashing Success

ConnCord Summer 2014

The National Spinal Cord Injury Association Connecticut Chapter (NSCIA CT) held its 5^th Annual Twilight Gala on March 8^th, 2014 at the Aqua Turf Club in Plantsville, Connecticut. The evening’s emcee was Emmy Award nominated News 8 Medical reporter Jocelyn Maminta. The guest speaker was former Rutgers University football player Eric LeGrand who suffered a spinal cord injury while playing against Army on October 16^th 2010.

Spinal Cord Injury and Exercise Go “Hand in Hand”

ConnCord Summer 2014

Why exercise? Physical activity is important for all of us. Exercise reduces the risk of developing chronic health problems such as heart disease, high blood pressure, diabetes and even some forms of cancer. For people with a spinal cord injury there can be added health benefits.

Connecticut Jammers are in Recruiting Mode...

ConnCord Summer 2014

Ever thought of trying Wheelchair Rugby, otherwise known as Quad Rugby or Murderball?   Now is the time!    

Third Time is a Charm at Roll on the Capitol

ConnCord Summer 2014

The 3rd Annual Roll on Capitol Hill was an unabashed success. From June 22-25, United Spinal Association and advocates from its membership division, National Spinal Cord Injury Association (NSCIA), made their presence felt in Washington, D.C. New and old faces injected enthusiasm and wisdom and created a palpable sense of excitement as attendees from 26 states, Puerto Rico and D.C. stormed the Hill. 

SAVE THE DATE!! Candidates' Forum on Disability Issues - Oct 9th

Posted August 2014

All Gubernatorial and Congressional candidates will be invited. Come hear the candidates pre-sent their platforms on disability issues on October 9th at Manchester Community College!

For paralyzed men, sexual function just as important as walking

Posted August 2014

 In 2009, Kent Stephenson's motorcycle crashed, leaving him paralyzed. He was just 21 years old and would never walk again,and devastated to learn that he would never have sex again. Or so he thought...

Powerful Tools for Caregivers receives proclamation from Danbury Mayor

Posted August 2014

The Mayor of Danbury CT Mark Boughton Proclaims August 6th Powerful Tools for Caregivers Day!

Are You Suffering with Pain?

The Translational Pain Research Group at the Brigham and Women’s Hospital is
seeking individuals with pain as a result of Spinal Cord Injury to participate in a
research study.

Adaptive Cycling Clinic

Posted August 2014

Thursday, August 14th, 2014, 4:30 p.m.– 7:30 p.m. Ever thought about trying cycling as a sport
or for recreational enjoyment? oin us for this great clinic!

Take A Veteran Sailing

Posted August 2014

Join us for a day of sailing for veterans with disabilities
Food, Fun and Sailing!
Date: SEPTEMBER 14, 2014

Gaylord SCI Support Group: Adaptive Driving - July 21, 2014

Posted July 2014

Save the Date: Annual Wheeling & Able Golf Classic: Sept 25, 2014

Posted July 2014

Come out for a great day of golf on one of New England's finest public courses to benefit the programs and services of the Connecticut Chapter of the National Spinal Cord Injury Association (NSCIA-CT).

NSCIA CT Chapter Annual Meeting and Picnic, June 21, 2014

Topic: The Ekso Bionic Exoskeleton Come and ask questions to see if you could benefit from the Ekso. The Annual Picnic and Meeting is also a great opportunity to connect with Board members and old friends.

Paraplegic in an exoskeleton opens the World Cup -- with a kick

posted June 2014

Juliana Pinto, a 29-year-old paraplegic, was one of eight patients chosen for the opening ceremony after extensive training in a lab in Sao Paulo.

Free lifetime pass for National Parks for disabled U.S. citizens

Did you know that US citizens and permanent residents with disabilities are eligible for a lifetime Access Pass that provides free access to more than 2,000 recreation sites managed by five Federal agencies?

Webinar: Eating Well to Prevent and Manage Secondary Conditions in SCI

Webinar begins: Thursday, June 5, 2014
6:30 PM - 8:00 PM.

Stimulation restores some function for 4 paralyzed men

April 8, 2014

An electrical device implanted in the backs of four paralyzed men has helped them move their legs, hips and toes during experimental research. It's a promising development for paralysis treatment, but doctors warn it isn't a cure. 

Proposed Substitute Bill No. 325

“Please take ACTION TODAY on Proposed Substitute Bill No. 325:  AN ACT CONCERNING MEDICAID RECIPIENTS WITH COMPLEX MEDICAL NEEDS. 

Gaylord SCI Support Group: Advanced technologies for use in the SCI population

April 2014

Please join us in welcoming Gaylord Hospital’s Erika Ozdemirer, DPT on Monday April 21st at 5:00 pm to discuss Advanced SCI Technologies.

Repair Stem Cells Institute Announces "Double Benefits for SCI" Stem Cells Treatment

Posted April2014

RSCI’s one-day treatment program in Florida, USA, is priced to bring stem cell treatment benefits to the greatest possible number of SCI patients.

YOUR PARTICIPATION IS NEEDED: Customized Wheelchair Regulations

Posted March 2014

The Department of Social Services is holding a public meeting to discuss the concerns of individuals with disabilities over Connecticut's new proposed customized wheelchair regulations.

Tobii EyeMobile: Control Windows 8 tablets using only your eyes

Posted March 2014

Now, navigating and controlling nearly any modern, off-the-shelf Windows 8 Pro tablet can be done with the simple, natural and relaxed movement of the eyes. 

Gaylord SCI Support Group Welcomes Achilles International

Please join us on March 10, 2014 in welcoming Erin Spaulding from the CT Chapter of Achilles International.

Take this Adaptive Sports Survey!

Posted February 2014

This survey includes questions that pertain to your personal life, health, and experiences with adaptive sports. Open until April 30, 2014.

Join us for the 2014 Twilight Gala & Auction!

posted January 2013

This year's gala will be held on March 8, 2014, featuring great food, an auction and dancing. Sponsorship is open until February 14... Sign up or sponsor today!

For Immediate Action! Your Rights Are Taken!

February 2014

Implementation of Rushed “Customized Wheelchair” Regulation Must Be Delayed

Seniors initially denied motorized wheelchairs receive them

February 2014

An NSCIA CT board member and a local seating and mobility company helped to obtain funding for a new and necessary wheelchairs.   

Adaptive Snowboarding and Other Winter Sports

Jan 29, 2014

Whether you were born with a disability or received it after an injury, it should never prevent you from enjoying life and the excitement of sports. From soccer and basketball to more extreme sports, like snowboarding, skiing, and dirt biking, there is something to fit everyone's style. 

Wheeling and Able Golf Classic Continues to be a Success!!

A field of golfers took off on September 10th for the 14th Annual Wheeling and Able Golf Classic at Lyman Orchards in Middlefield. Brad Field, Channel 30 chief meteorologist, who has been with us all 14 years, emceed the event. 

Meet the “Chair”men of the Board…Hudson Reps Making a Difference for NSCIA CT

In 2010, Ray Gorneault and Joe Uccello discussed what they could do to be more involved in the community, especially with the people they worked closely with in their professional lives. The two decided that joining the NSCIACT was a great way to try to give back to the people they work closely with, individuals with spinal cord injury.

2014 Powerful Tools for Caregivers Classes

CARP had a Successful 2013 and Looking Forward to an Even Better 2014….

CARP had its best season! CARP continued to offer recreational and competitive rowing opportunities for individuals with physical disabilities and/or visual impairments.  

Treadmill Training After SCI Promotes Recovery when Inflamation is Controlled

(from Ohio State University) New research suggests that treadmill training soon after a spinal cord injury can have long-lasting positive effects on recovery -- as long as the training is accompanied by efforts to control inflammation in the lower spinal cord.

Vermont Studio Center Offers SCI Artists a Great Opportunity….

The Vermont Studio Center is pleased to announce that four Creative Access Fellowships for month-long studio residencies will be awarded to visual artists and writers with spinal cord injury (SCI) as part of VSC's 

Just for your SCI Knowledge: What is Autonomic Dysreflexia?

Autonomic Dysreflexia (AD), also known as Hyperreflexia, is a potentially dangerous complication of spinal cord injury (SCI). In AD, an individual's blood pressure may rise to dangerous levels and if not treated can lead to stroke and possibly death. Individuals with SCI at the T-6 level or above are at greater risk. 

TEK Robotic Mobilization Device: designed to replace wheelchairs

January 2014

The TEK Robotic Mobilization Device is a machine developed to replace the wheelchair. In this demonstration video, we see a man with a severe injury to his spinal cord able to move about in ways that a wheelchair would make very difficult.

Webinar: Neuroregenerative Properties of Dental Pulp Stem Cells

posted January 2014

Webcast begins January 30, 2014 at 6:30 pm.  Don't miss this free WebCast in the Knowledge in Motion SCI Webcast Series.

Tongue piercing lets paralyzed drive wheelchairs

January 2014

An experimental device is letting paralyzed people drive wheelchairs simply by flicking their tongue in the right direction.

Mount Sinai Rehabilitation Hospital SCI Informational Series

Posted November 2013

Join us on Wednesday Novemberr 20, 2013. Topic: Wellness Opportunities for Winter.

Are you the romantic partner of someone with SCI?

Posted November 2013

Take this brief anonymous survey to provide research on caregivers and partners of Spinal Cord Injured individuals.

Learn about the MyoPro limb orthosis

Posted November 2013

The MyoPro™ myoelectric limb orthosis is a powered brace that can reinitiate movement of a partially paralyzed arm.  Learn more on November 19 at the Hospital for Special Care.

Don't Miss Gaylord Support Group, Coping with SCI, Oct 17.

Posted October 2013

Please join us in welcoming Francisco Fernandes and Carleton Crooks, 2 inspirational speakers on coping and adjusting to life after injury. 

Special Needs Trusts: The Basics

Would you like to learn how to provide future financial assistance to a disabled loved-one in your life? Join us on September 26, 2013 at Gaylord Hospital to find out.

Meet Ms. Wheelchair America, Jennifer Adams

posted September 2013

Join us at Gaylord Hospital, Wallingford, CT on: Friday, September 27th in Brooker Lecture Hall 5:30pm-7:00pm...

Gaylord Hospital SCI Support Group: Nutrition Needs After SCI

posted September 2013

Please join us in welcoming Martha Mencseli, RD, CDN, CNSC, at 5:00 pm, Septmeber 16, 2013, at the Luscomb Gym at Gaylord Hospital in Wallingford, CT.

Got SCI Questions? We've Got Answers!

Introducing the NSCIA CT Chapter Blog & Forum. Current topic: experts from Gaylord Specialty Healthcare discuss the EKSO.

What do you need to know about living with a Spinal Cord Injury?

Tell us what you think in this brief survey!

Stem Cell Injections Improve Spinal Injuries in Rats

An international team led by researchers at the University of California, San Diego School of Medicine reports that a single injection of human neural stem cells produced neuronal regeneration and improvement of function and mobility in rats impaired by an acute spinal cord injury (SCI).

Adaptive Cycling in Connecticut

Simsbury is home to CT Adaptive Cycling, a not-for-profit, bike-share program established in 2011 that offers members free use of hand cycles and recumbent bicycles specially designed for persons with disabilities.

Traveling with a Disability and/or Medical Condition – TSA Care Help Line

TSA Cares is a helpline to assist travelers with disabilities and medical conditions. TSA recommends that passengers call 72 hours ahead of travel to for information about what to expect during screening.

Bureau of Rehab Services (BRS)

Bureau of Rehab Services can assist your career planning by:

• Helping you explore your interest
• Helping you to identify your strengths
• Helping you know where you might need support
• Provide job training
• Providing a job coach
• Identifying jobs you can apply
• Providing other services you might need to reach a career goal

United Spinal Rolls on the Capital

United Spinal Association held its second annual Roll on Capitol Hill in Washington, D.C., on June 16-19. The event brought together more than 50 wheelchair users and activists from across the country to discuss health care, better access to complex medical equipment, and the United Nations Convention on the Rights of Persons with Disabilities.

Ticket to Work & Work Incentives

Work incentives are special rules that make people with disabilities receiving Social Security Disability Insurance or Supplemental Security Income to explore work options and still receive benefits until that are able to support themselves. Social Security Work Incentives help beneficiaries with a disability remove barriers to work. Work Incentives offer support services and provide a safety net to assist beneficiaries in finding the right job and succeed in the work place.

ParaGolfer now ready to be used in New Britain

DJ Gregory, Founder of the Walking for Kids Foundation, was in New Britain, CT this week to check in on the Handicapped ParaGolfer Cart that his Foundation (Walking for Kids Foundation) made a $6,000 donation for. The cart, over $20,000, was purchased a few months ago by Stanley Golf Course through private donations, with Walking for Kids Foundation being one of the biggest individual donors. The ParaGolfer cart is now available for usage at Stanley Golf Course for both youth and adults.

Advanced Wheels Gives Back to the Community

In an industrial park off Bradley Park Road, a small family-run company fills an essential niche by building, selling and servicing vans that are adapted for people in wheelchairs.

4th Twilight Gala Raised More Than $25,000

The National Spinal Cord Injury Association Connecticut Chapter (NSCIA CT) held its 4th Annual Twilight Gala on March 9, 2013 at the Aqua Turf Club in Plantsville, Connecticut. The event was hosted by Brad Field, NBC Connecticut’s Chief Meteorologist, and honored Paul Nitz, a four-time member of the U.S. Paralympics Track & Field Team, who won three consecutive Gold Medals at the International Paralympic Games.

East Granby Company Knows An Inspirational Story When It Sees One

Posted July 2013

Advanced Wheels recognizes contest winner Zackary Capitao with prizes and a donation to the charity of his choice!

SCI Support Group:Vocational Rehab-Transition back to Work & School

posted June 2013

Kiera Bulford MA, CRC, from the Bureau of Rehabilitation Services presents: Vocational Rehabilitation: Transition back to Work & School, july 8th at 5:00 pm, at Gaylord Hospital

2013 Wheeling & Able Golf Classic: Great Golf for a Great Cause

On Sept. 10, 2013 Come out for a great day of golf on one of New England?s finest public courses to benefit the programs and services of the Connecticut Chapter of the National Spinal Cord Injury Association (NSCIA-CT).

Senate Bill Introduced To Create Separate Benefit Category for Complex Rehab Technology

Senators Chuck Shumer and Thad Cochran Join In Bipartisan Introduction of Senate Companion Bill S. 948

Gadgets and Gizmos for Everyday - Gaylord Support Group May 13

posted May 2013

Gaylord Hospital invites you to attend the Spinal Cord Injury Support Group, featuring Donald Hoerman, ATP from the NEAT Marketplace as he presents: "Gadgets and Gizmos for Everyday"

Ekso Bionics' robotic suit eyes-on (video)

Since last we saw the Ekso Bionics robotic suit, which helps folks with lower-extremity paralysis or weakness to stand up and walk, the $110,000 exoskeleton has been on the market for about a year.

NCART: Schumer to Introduce Senate Bill for Separate Benefit Category

posted April 2013

Sen. Chuck Schumer (D-N.Y.) will introduce a Senate companion bill to provide a separate Medicare benefit category for complex rehab technology (CRT).

CT Adaptive Rowing Program Launches for 2013

posted April 2013

The CT Adaptive Rowing Program will offer two Orientation Sessions in May for the 2013 Season. Please click more for the dates and times.

Are You Suffering with Pain?

Posted March 2013

The Translational Pain Research Group at the Brigham and Women's Hospital is seeking individuals with pain as a result of Spinal Cord Injury to participate in a research study.

Transportation Information from www.connect-ability.com

If public transportation won't work for you or if you just want the flexibility of having your own vehicle, you might want to consider purchasing a car or van. Many people with disabilities are qualified to drive a vehicle, if it has been suitably modified. Check the following for information on being evaluated as a driver, as well as how to purchase, modify, and pay for your own vehicle.

3rd Annual Wheel Walk Brings Health Awareness & SCI Together

[Submitted by Todd Johnston] The Third Annual Wheeling and Able Shelton Riverwalk Wheel/Walk for Fitness was held on Sunday, October 7, 2012 at 10AM in Shelton, CT. This year the event was co-sponsored by the CT Chapter of NSCIA and Moving With HOPE, Inc.

Gaylord Announces Big News in Rehabilitation

Gaylord Specialty Healthcare has recently acquired an Ekso unit and is excited to share this wonderful accomplishment with the spinal cord injury community! Gaylord is one of just 20 centers worldwide that has access to this cutting edge rehabilitation technology.

Spinal Cord Injury & Maintaining Healthy Skin

Your skin is much more than an outer surface for the world to see. It protects you from bacteria, dirt and other foreign objects and the ultraviolet rays of the sun, and contains the nerve endings that let you know if something is hot or cold, soft or hard, sharp or dull. Your skin also plays an important role in regulating your body's fluids and temperature.

Players Wanted: Golphers in Motion

Mount Sinai Rehabilitation Hospital in collaboration with Willow Brook Golf Course present an opportunity to: Tee up with us!

Dietary Guidlines for Individuals with Spinal Cord Injury

Eating is one of life’s greatest pleasures. Your body needs food that is rich in nutrients to create energy, resist infection and enable you to have a full, productive life. After a spinal cord injury, how your body’s systems – such as bowel, bladder and skin – function are altered due to your paralysis.

Sail CT Access Hosts 'Take a Vet Sailing'

The Take a Vet Sailing event was held on September 16, 2012 at 10AM held at Brewer's Pilot Point Marina located in Westbrook, CT through Sail CT Access www.sailctaccess.org. This year we had sponsors from: CT Chapter of NSCIA, Wallingford, CT; Moving With HOPE (Health Oriented Physical Education), Shelton, CT; Advanced Wheels, Granby CT; American Veterans Assistance League, Cheshire, CT; Neil's Donuts, Yalesville, CT; and a private donation.

NSCIA-CT & Powerful Tools for Caregivers

The CT Chapter of NSCIA Board Member, Todd Johnston is working with Dr. Bill Vacek who is a CT Chapter member of the NSCIA on providing Powerful Tools for Caregivers (PTC), which provides caregivers the tools and strategies that they need to better handle the unique challenges they face daily.

3rd Annual Wheeling and Able Shelton Riverwalk Wheel/Walk for Fitness

Posted February 2013

The Third Annual Wheeling and Able Shelton Riverwalk Wheel/Walk for Fitness was held on Sunday, October 7, 2012 at 10:00 am in Shelton, CT.

A Class for Family Caregivers @ Hospital for Special Care

Posted December 2012

Begining January 19, 2013, Powerful Tools for Caregivers will offer an educational program designed for family caregivers. This program will help you take care of yourself while caring for a relative or friend.

All-terrain chairs open doors

December 27, 2012

Kurt Johnston, 28, of Osh Kosh, has gone turkey hunting in his chair in the fields and forests of Wisconsin. It's cool, he says. We tell everyone it looks like a tank.

U.S. Paralympic Athlete Community Roadshow

posted November 2012

On November 15, 2012, come and meet Katie Holloway and Steve Serio - two elite U.S. Paralympians, and hear their inspirational stories.

Nobel Winners Unlocked Cells Unlimited Potential

posted October 2012

The two scientists who won this year's Nobel Prize in Physiology or Medicine discovered that cells in our body have the remarkable ability to reinvent themselves.

Gaylord SCI Support Group has the EKSO!

posted October 2012

Monday October 15, 2012 @ 5 pm: Join Erin Prastine, PT, MS, NCS and learn about Gaylord's newest piece of rehabilitation equipment...the EKSO!

UK Paraplegic Woman Uses Robotic Suit to Walk

posted September 2012

A British woman paralyzed from the chest down by a horse riding accident has become the first person to take home a robotic exoskeleton that enables her to walk.

Don't Miss the Mount Sinai SCI Informational Series

posted September 2012

SAVE THE DATE: September 19, 2012, 4:30 PM. Mount Sinai SCI info Series presents a discussion on Bladder Management/Spasticity and Botox by Dr. Marlene Murphy-Setzko. Dinner is available - please RSVP.

CT Chapter teams up with Powerful Tools for Caregivers

Posted August 2012

The Powerful Tools for Caregivers (PTC) program is a 6 week course that empowers caregivers to address their challenges more effectively. The NSCIA CT Chapter is teaming up with PTC to offers these courses throughout the state.

Community Builder Contest Brings Bionic Technology to Gaylord's SCI Program

Thanks to the generosity of the Stratton Faxon law firm in New Haven and the power of social media, Gaylord Specialty Healthcare emerged the victor in an online charitable giving contest on July 11 that had four non-profit organizations vying for a $100,000 cash prize.

Powerful Tools for Caregivers: Case Studies

It is now well known that caregivers face multiple challenges. The Powerful Tools for Caregivers (PTC) program is an educational resource that empowers caregivers to address these challenges more effectively. One of the main goals of the program is to help caregivers to thrive as individuals.

Metro Taxi Opens Station in West Haven

In September, Metro Taxi opened West Haven’s first publicly accessible compressed natural gas fueling station on Industry Drive. Company President and CEO Bill Scalzi made the announcement along with New Haven Mayor John M. Picard, U.S. Sen. Richard Blumenthal, D-Conn., U.S. Rep. Rosa L. DeLauro, D-3, and Michelle Duprey, director of the New Haven Department of Services for Persons with Disabilities.

Gaylord Honors NSCIA CT Chapter Board Member

WALLINGFORD, CT (May 18, 2012) –Erin Prastine, an inpatient physical therapist at Gaylord Specialty Healthcare, was named the 2012 Employee of the Year during a ceremony on May 8.

On the Water, My Disability is No Longer Disabling

ConnCord, Summer 2012

The CT Adaptive Rowing Program (CARP) is well into the 7th season of offering individuals with a physical disability or visual impairment an opportunity to engage in the sport of rowing.

15 Quick Guidelines for Wheelchair Safety and Maintenance

Regular Maintenance is very important. Keep the wheelchair in good repair and you will prevent many accidents and malfunctions

Save the Date: Annual Wheeling & Able Golf Classic: Sept 11, 2012

posted August 2012

Come out for a great day of golf on one of New England's finest public courses to benefit the programs and services of the Connecticut Chapter of the National Spinal Cord Injury Association (NSCIA-CT).

SCI Total Fitness Program Breaks Down the Barriers of Exercise For People with Spinal Cord Injury

July 10, 2012

SCI Total Fitness, an exercise ideology created by Physical Therapist Kristin McNealus, has launched the first online exercise program for people with spinal cord injuries.

The Big Assist 2012 - July 11, 2012

posted June 2012

The Big Assist is an exhibition hockey game hosted by Ryan Shannon of the Tampa Bay Lightning and the Anaheim Ducks, to benefit the Obie Harrington-Howes Foundation. ** 15 free tickets are available to NSCIA CT Chapter Members!

Paralyzed Rats Learn to Walk Again In Rehabilitation Experiment

posted June 2012

Swiss scientists have restored mobility to rats paralyzed by spinal cord injuries, a development that could inspire new hope for people who've suffered from similar debilitation.

3rd Annual Twilight Gala another Smashing Success!

Posted May 2012

This year's 2012 Twilight Gala, held on March 17th was another unprecedented success. Click below for a thank you message to our Sponsors and Supporters:

NSCIA Annual Picnic 2012

Posted May 2012

The NSCIA Ct Chapter presents our annual picnic at Gaylord Hospital on June 16, 2012. Guest Speaker: Mitch Tepper, Ph.D, M.P.H.

A Research Study in Spinal Cord Injury

Posted May 2012

Researchers at Gaylord Hospital, Hospital for Special Care and Boston University are conducting a study looking at quality of life after a spinal cord injury, a traumatic brain injury, or diagnosis of cerebral palsy.

Clinical Trial at Yale University Departments of Radiology and Neurology

posted April 2012

Recruiting patients (ages 18-60) who suffered traumatic spinal cord injury between cervical spine level C6 and thoracic spine level T12 who remain neurologically injured at severity level A or B.

Gaylord Sports Association has become Paralympic Sport Club of Southern New England

posted February 2012

This prominent designation not only gives national visibility to Gaylord Hospital for the established adaptive sports that we currently provide, but will enhance our existing programming and broaden the scope of adaptive sports to the elite level.

Informational Teleconference on Accessible Transit

posted February 2012

Join us on CRIS Radio for a Teleconference Discussion on the Transportation Options available in Connecticut. Each teleconference will focus on the transportation options in a specific region. These teleconferences will help you make the most of the public transportation services that are available to you!

Gov. Malloy Proposes Additional Agency Consolodations

Posted February 2012

Governor Malloy has proposed merging the Office of Protection and Advocacy for Persons with Disabilities (P&A) with the Commission on Human Rights and Opportunities (CHRO).

Gaylord Sports Association to host 2 Adaptive Cross Country Ski Clinics

posted January 2012

For the first time ever, the Sports Association is pleased to team up with the New England Nordic Ski Association in February to bring to you two Adaptive Cross-Country Ski Clinics right here in Connecticut!

Compressed Natural Gas Fueling Station Opens at Metro Taxi

Metro Taxi, Connecticut’s largest, full-service taxi company, recently unveiled a Compressed Natural Gas (CNG) fueling station and rolled out its new Metro Access wheelchair-accessible taxi that is powered by CNG.

Inaugural NSCIA/ABLE to Travel Membership Cruise -March 03, 2013

posted January 2012

United Spinal's accessible travel guru Mary Peterson has worked hard on this membership benefit to reserve all the ship’s accessible cabins, and we are offering this special deal to your local members before we promote it more broadly to our members at large, but we need you to act fast!

Mount Sinai Rehabilitation Hospital Spinal Cord Injury Informational Series

posted January 2012

Save the Date: Wednesday, January 18, 2012
4:30 – 6:30 p.m.

Guest: Elanah Sherman from the State Office of Protection and Advocacy for Person’s With Disabilities (ADA, Lemon Law, Voting Rights)

Meeting Location: Mount Sinai Rehabilitation Hospital 490 Blue Hills Ave, Hartford, CT.

2011 ANNUAL HOLIDAY GATHERING

Posted December 2011

Landmark Spinal Repair Stem Cell Trial

November 21, 2011

The fifth and final patient in the Geron Corp sponsored trial of a human embryonic-stem-cell-derived treatment for severe spinal cord injury was treated on Nov. 16. at the Stanford University School of Medicine and Santa Clara Valley Medical Center.

CT Access for All: Wheelchair Accessible Taxi Initiative

Posted December 2011

In 2009, legislation was passed permitting wheelchair accessible taxis in the state of Connecticut and in 2010 Connecticut Clean Cities received a grant for alternative fuel vehicles. But in October 2011, the CT DOT denied both applications and granted no additional permits.

Lack Of Accessible Cabs Doesn’t Sit Well With Senator

November 18, 2011

More than two decades after the passage of the Americans with Disabilities Act, one of the chief architects of the legislation is looking to eliminate transportation hurdles that people with disabilities continue to face.

Have you had trouble getting the Complex Rehab Technology equipment you need?

Posted November 2011

CELA 2012 is an opportunity for you to meet with your Members of Congress, in Washington, DC, to discuss these issues. Consumer Advocate scholarships, including airfare, ground transportation, lodging and meals are available.

The Annual Wheeling and Able Golf Classic has another successful year!

Posted November 2011

A field of golfers took off on September 13th for the 12th Annual Wheeling and Able Golf Classic at Lyman Orchards in Middlefield. A special thanks to Eastern Rehabilitation Network for sponsoring another year of Golf for a GREAT Cause! Thank you to all our corporate sponsors and to the golfers who participated this year! It's because of your continued support and generosity that the chapter is able to continue our work!

The Annual Wheeling and Able Golf Classic has another successful year!

posted October 2011

A special thanks to Eastern Rehabilitation Network for sponsoring another year of Golf for a GREAT Cause! Thank you to all our corporate sponsors and to the golfers who participated this year! It's because of your continued support and generosity that the chapter is able to continue our work! We hope to see you all again next year!

Grand opening: Metro Taxi CNG clean energy station

posted October 2011

The NSCIA CT Chapter helped celebrate the Grand Opening of Metro Taxi’s public access compressed natural gas station on Monday September 19, 2011. Click below for more pictures and information.

NSCIA Supports CT Team Reeve 2nd Annual Roll-A-Thon

posted October 2011

The CT Chapter of NSCIA supported the CT Team Reeve 2nd Annual Roll-A-Thon on Sunday September 25, 2011. A great many people attended the event in Hartford's Bushnell Park, participating in adaptive sports and a wheelchair course through the park. Participants received information from our chapter and we signed up 11 new members.

Save the Date: Shelton Riverwalk Wheel / Walk for Fitness

OCTOBER 2, 2011 - Shelton, CT

More Than Walking: a filmaker's SCI journey

Posted August 2011

Jonathan Sigworth - the youngest of three brothers - received a spinal cord injury at age 19 while studying in northern India in February 2006.

Transit cuts: Public Hearing Schedule for Fare Increase/Service Reduction

Posted August 2011

The Connecticut Department of Transportation will hold public hearings to receive comments on proposed rail, public transit bus, express commuter bus, ADA paratransit fare increases (effective on or after November 1, 2011) and proposed reductions in bus and rail service. The proposed new bus fares will affect local bus systems serving the areas of Hartford, New Haven, Stamford, Waterbury, New Britain, Meriden, Bristol and Wallingford....

Research Study: Are you living with a long-term incomplete Spinal Cord Injury?

Posted August 2011

The purpose of this study is to describe any changes in physical function that people with an incomplete SCI may have as they go through middle age.

To be eligible for this study you must:

1. Have had a traumatic incomplete spinal cord injury at least 15 years ago
2. Be 35 to 65 years old
3. Be able to read or speak English

6th Annual SCI/CARP Pot-luck Cookout on the CT River

Wednesday, August 17th, 2011 at 5:00 p.m.
This cookout is open to all persons with a Spinal Cord Injury, family, friends and CARP Members. This program is co-sponsored by the National Spinal Cord Injury Association, Connecticut Chapter and facilitated by Bryan Tronosky, PT, Nicole Burdick, OTR/L and Paige McCullough-Casciano, CTRS from Mount Sinai Rehabilitation Hospital.

For people in wheelchairs, calling a cab is not an easy option

July 19, 2011

When Charles Smyth's sister called to say that their mother was dying and he should get to her bedside quickly, Smyth had another problem to deal with first: How to get to the hospital. Smyth is paralyzed and uses a wheelchair. He regularly takes a paratransit service for people with disabilities, but it must be booked at least a day in advance. On that day, he called to see if the company would make an exception. It wouldn't. He scoured the Yellow Pages for an alternative.

Save the Date: 2011 Wheeling & Able Golf Classic

Come out for a great day of golf on one of New England’s finest public courses to benefit the programs and services of the Connecticut Chapter of the National Spinal Cord Injury Association (NSCIA-CT). Funds raised at the 12th Wheeling and Able Golf Classic will stay in CT to help those who have suffered a SCI and will help supplement statewide education and outreach programs.

Upper Limb Robotic Training Study in Spinal Cord Injury

Posted June 2011

The purpose of this study is to investigate the mechanisms of motor recovery in patients with chronic loss of function in the upper-limb after Spinal Cord Injury, and to characterize the neurophysiological profile of patients and specific muscles that respond to robotic training by using non-invasive brain stimulation , Transcranial Magnetic Stimulation(TMS). We aim to investigate if arm muscle strength and function improve through innovative visual-sensory-motor upper-limb robotic training.

2011 CT Chapter Annual Picnic

June 2011

Saturday June 18, 2011 - 12-3pm

Paraplegic Man Stands, Steps with Assistance and Moves His Legs Voluntarily

Posted: May 2011

A team of scientists at the University of Louisville, UCLA and the California Institute of Technology has achieved a significant breakthrough in its initial work with a paralyzed male volunteer at Louisville's Frazier Rehab Institute.

Quadriplegic Participants Needed For Research Study

Posted April 2011

Patients who are quadriplegic from spinal cord injury,brainstem stroke, muscular dystrophy, or motor neuron disease such as amyotrophic lateral sclerosis (ALS) and have no or limited use of their hands are needed for an FDA regulated research study to evaluate a new technology which may allow an individual with quadriplegia to control a computer cursor by thought. This study is invasive and requires surgery.

StemCells, Inc. Initiates World’s First Neural Stem Cell Trial in Spinal Cord Injury

Posted: March 2011

StemCells, Inc. (Nasdaq:STEM) announced today the initiation of a Phase I/II clinical trial of its proprietary HuCNS-SC(R) human neural stem cells in chronic spinal cord injury. This trial is now open for enrollment, and will accrue patients with both complete and incomplete degrees of paralysis who are three to 12 months post-injury. The trial is being conducted in Switzerland at the Balgrist University Hospital, University of Zurich, a world leading medical center for spinal cord injury and rehabilitation.

Adjusting to a New Spinal Cord Injury

October 2010

Adjusting to spinal cord injury is a difficult and continuous process. Individuals who are newly injured will likely experience grief. This is period of mourning that is similar to that following the death of a loved one. The difference is that you are grieving the loss of your sense of touch along with your ability to walk or use your hands. It is not uncommon for you to experience many different thoughts and feelings after injury. There is no step-by-step grieving process, but some thoughts and feelings are common after injury.

Central Pain Syndrome

October 2010

Central pain syndrome is a neurological disorder caused due to damage to central nervous system which includes the brain, brain stem, thalamus and spinal cord. Alternate names: • Thalamic pain syndrome • Dejerine-Roussy syndrome • Posterior Thalamic syndrome • Retrolenticular syndrome • Central post-stroke syndrome

Wheelchair Maintenance Tips

October 2010

Simple everyday maintenance of your manual wheelchair is the easiest way to extend the life of your wheelchair, as well as ensure your safety during everyday use. Many of today’s chairs are fairly low maintenance, requiring attention when something breaks.

General Membership Meeting for NSCIA-CT

• When: Wed Nov 17, 2010 4:30pm - 6:30pm
• Where: Mount Sinai Rehabillatation Hospital - 490 Blue Hills Avenue Hartford Ct, 06112
• Topic of Presentation: Dr. Narayanan of the Mount Sinai Wound Care Center will do a presentation on wound care, followed by a question and answer session.
• Free Food and Beverages will be provided.
• PLEASE RSVP by Tuesday Nov 16, 2010 to Paige McCullough-Casciano: pmccullo@stfranciscare.org or (860) 714-2421

October marks National Disability Employment Awareness Month

posted October 2010

October marks National Disability Employment Awareness Month, which was created in 1945 to increase the public’s awareness of the contributions, skills and needs of American workers with disabilities. Through this year’s theme, “Talent Has No Boundaries: Workforce Diversity Includes Workers with Disabilities,” the U.S. Department of Labor celebrates diversity across the country.

First patient treated in embryonic stem cell trial

posted October 2010

WASHINGTON — U.S. doctors have begun treating the first patient to receive human embryonic stem cells, but details of the landmark clinical trial are being kept confidential, Geron Corp said on Monday. Geron has the first U.S. Food and Drug Administration license to use the controversial cells to treat people, in this case patients with new spinal cord injuries. It is the first publicly known use of human embryonic stem cells in people.

Christopher Reeves Foundation Kicks Off New CT Chapter with Roll-a-thon

Posted September 2010

The Christopher Reeve Foundation has started a CT Chapter. They are having a roll-a-thon in Bushnell park on Saturday, September 18th.

The roll-a-thon will feature able bodied and wheelchair bound individuals cooperating in a relay race around a designated area of the park. This will also include individuals who use a power chair. There is registration fee, however the Foundation is WAIVING the fee for individuals with disabilities. You can create a team or come out and participate on your own.

Shelton Riverwalk Wheel / Walk for Fitness - October 3, 2010

11th Annual Wheeling & Able Golf Classic - September 14, 2010

Save the date - it's almost here!
Come out for a great day of golf on one of New England’s finest public courses to benefit the programs and services of the Connecticut Chapter of the National Spinal Cord Injury Association (NSCIA-CT). Funds raised at the 11th Wheeling and Able Golf Classic will stay in Connecticut to help those who have suffered a spinal cord injury and supplement statewide education and outreach programs.

Robotic Legs Get Wheelchair Users Walking

Posted July 2010

A new pair of robotic legs out of New Zealand lets wheelchair users do the improbable--stand, walk, and even go up and down stairs. Users transfer themselves from their chair into the Robotic Exoskeleton (Rex) by holding on to Rex's legs. They then strap themselves in and use a hand-controlled joystick and control pad to maneuver the battery-powered mobility-assist device on solid, stable surfaces such as those inside the home or workplace.

Benefits of Eating Right

ConnCord Spring-Summer 2010

People with spinal cord injuries have unique nutrition issues, said Vickeri Barton, associate director of nutrition at Harborview Medical Center. Partly this is due to changes in body composition and metabolism, partly to changes in activity level, and partly to the barriers to preparing meals, shopping, and so on. All these factors may make it harder to maintain good nutrition after SCI.

Rehab Strong: a New Business Trying to Benefit SCI

ConnCord Spring-Summer 2010

Dr. Michael Kruger was paralyzed and wheelchair-bound for over two years after suffering from an unusual spinal cord injury. After months of physical therapy, gains in strength and movement were minimal. A friend and therapist of Dr. Kruger introduced him to Wes Norris, Exercise Physiologist and President of Rehab Strong. Since working with Wes, Dr. Kruger is driving, swimming and has stood-up several times.

A Successful Event earns the Chapter $20,000

ConnCord Sprong-Summer 2010

The First Annual Twilight Gala was a huge success. 121 guests came to the Hartford Marriott on January 30th to support the National Spinal Cord Injury Association, Connecticut Chapter. Through ticket sales, silent and live auction, the Chapter raised close to $20,000.

Words from Dr. David Rosenblum

ConnCord spring-Summer 2010

A portion of his speech at the Twilight Gala in accepting the Appreciation Award for Gaylord Rehabilitation Hospital. We are all here today with a shared interest- and passion- to help the CT chapter and- importantly- to help make a difference for people with SCI. Gaylord has specialized in the care of people with SCI for over 30 years, and has enjoyed a close collaboration with the CT chapter of the NSCIA – with their office at Gaylord- for that entire time.

Tee Up with 'Golfers in Motion'

posted May 2010

CT Adaptive Rowing Program Gets Ready for 2010 Season

Posted April 2010

On Wednesday May 26th, Mount Sinai Rehabilitation Hospital in collaboration with Riverfront Recapture, Inc. and the National Spinal Cord Injury Association, Connecticut Chapter present an opportunity to Learn to row with us!

1st Annual SCIACT Twilight Gala is a Success!

posted Feb 2010

I would just like to thank everyone for helping out and attending the first Annual Twilight Gala. Overall the event was a tremendous success. For a first time out event the final total is not what is important. Its the enthusiasm and support everyone showed. From the hard work the committee did to the support we got from the Marriott the night of the event. I could not ask for anything more.
- Bill Mancini, V.P. NSCIA CT Chapter

Soul Legend Teddy Pendergrass Dies After Battle with Colon Cancer

January 14, 2010

Soul singer and legend Teddy Pendergrass has died at age 59, eight months after surgery for colon cancer.Colon cancer was not the only health challenge faced by Pendergrass in his life. In 1982, a car accident left him paralyzed from the waist down.

Health-related quality of life among individuals with long-standing spinal cord injury

Jan 04, 2010

The study findings showed that veterans with SCI experienced lower HRQOL than their non-veteran counterparts. A qualitative study is recommended to evaluate why HRQOL was lower in veterans than in non-veterans with SCI although veterans had higher incomes as a result of their pensions and increased access to equipment, and medications.

'Stepping Forward - Staying Informed Evening Lecture Series' presents :

New England SCI Conference Provides Some Great Topics

11/15/2009

The New England Regional Spinal Cord Injury Center presented its 5th annual consumer research conference: Stepping Forward Staying Informed: Exploring Recent Advances in Treatment of Spinal Cord Injury: Stem Cells, FES, Spasticity, and Depression. The conference was hosted by the Boston Medical Center on Oct. 3rd at the Boston Convention and Exhibition Center. The Boston Medical Center and Gaylord Hospital together form the NERSCIC, one of only 14 model SCI centers in the country.

CARP is Making Waves on CT River

11/25/2009

The Connecticut Adaptive Rowing Program (CARP) enjoyed its most successful season. CARP Membership for the 2009 season doubled with 22 members rowing on Wednesday evenings and 10 additional members rowed on Monday evenings.

Sold Out Field Comes Out Swinging for SCI

11/12/2009

A sold out field of golfers took off on September 15th for the 10th Annual Wheeling and Able Golf Classic at Lyman Orchards in Middlefield. The weather was spectacular, and that in itself is a celebration as the previous two tournaments saw horrific rain! Helen Reeve, Christopher Reeve’s stepmother, was our special guest.

Connecticut Loses a Great Advocate

Posted October 19, 2009

Tom Connors was one of the heroes of the Disability Rights Movement that began as a “grassroots movement” for civil rights and independence for people with disabilities that eventually realized sweeping legal victories over the years.

DID YOU KNOW...

October is National Disability Employment Awareness Month!

Get involved! Follow these links for more information:

Redefining ‘Cured’

Sep 23, 2009

(Newsweek.com) Alan T. Brown: "He was 20 years old, young and single and free, and in one second went from a vibrant college student to a quadriplegic, with no movement below his chest."

A spinal-cord-injury activist puts a new priority on living with—not fighting—paralysis.

Paralyzed Rats Walk Again

September 20, 2009

(HealthDay News) -- A three-pronged approach to treating spinal cord injuries allowed paralyzed rats to walk without receiving signals from the brain, scientists report. The combined treatment enabled the rats to walk with a near-normal gait on a treadmill, without the muscles receiving signals from the brain.

Film

Posted August 2009

Filmmaker Jon Sigworth will present two Connecticut screenings of his recently completed SCI documentary “More Than Walking”, August 13 in New Haven and August 31 in Hamden.

Ryan Martin hosts 1st Annual Wheelchair Basketball Camp

Posted July 2009

30-year old pro wheelchair basketball player and CT native Ryan Martin hosted the 1st annual Ryan Martin Wheelchair Basketball Camp on July 20, 2009. Click below for the video!

SCI / MS Research Study

Posted July 2009

- Care Call, a phone-based intervention, aims to reduce health problems and improve quality of life for people with SCI or MS.
-You will not need to travel to take part in this study; you may stay in your home.
-You will receive $100 for your participation and completion of the study.

Let's Go Rowing!

Posted July 2009

Introducing the CT Adaptive Rowing Program (CARP). Mount Sinai Rehabilitation Hospital in collaboration with Riverfront Recapture, Inc. and the National Spinal Cord Injury Association, Connecticut Chapter present an opportunity toLearn to row with us!

Assistive Technology Demo Center Opens in Eastern CT

Posted June 2009

The Eastern Connecticut Assistive Technology Center located at the Windham Regional Community Council, 872 Main Street in Willimantic, CT will open on June 24th! The Connecticut Tech Act Project is very excited to have a new partner agency offering Assistive Technology demonstrations in the Eastern Region of Connecticut.

National Institutes of Health Guidelines May Pose Stem Cell Setback

Posted May 2009

The NIH (National Institutes of Health) has released draft guidelines that present a serious set-back to human embryonic stem cell research. The “Connecticut Stem Cell Research Advisory Committee” has been working on a response to this problem but many were unaware of this issue until their meeting this past Tuesday.

The Kennedy Center’s Travel Training Program

Conn Cord Spring 2002

The Kennedy Center, one of the largest human service agencies in Connecticut, introduces travel training to the Middlesex area.

People With Disabilities Can Work - It’s the law!

Fall/Winter 2004

Connecticut now offers a public vocational rehabilitation program that helps people with disabilities go back to work.

National Transplant Assistance Fund

Conn Cord: Fall/Winter 2004

With the rising costs of health care products, patients with spinal cord injury find it difficult to pay for uninsured medical expenses. Now, there’s some help!

Easter Seals Opens Mobilty Center

Conn Cord: Fall/Winter 2004

The Easter Seals of Connecticut has created a Mobility Center to help people with disabilities drive.

Support for People with SCI...

Conn Cord: Spring 2003

Support for people with spinal cord injury comes in many different forms and from many different people, and it helps to keep them moving forward. The emotional support from family and friends has a profound impact on an SCI person’s life.

Boundless Playgrounds

Conn Cord: Spring 2003

Chances are that one of your favorite childhood memories is of playing on the playground The slides, the swings, the hours of entertainment! What if your child has a disability that keeps him or her from creating their own memories of playing on the playground?

Miami Project Special Report: Genetic Research Update

Conn Cord Spring 2002

News that the human genome has been sequenced has excited both scientists and the public, but what does this mean and how will the information be used to improve medicine?

FITNESS AND SCI: Not only for physical reasons.

Conn Cord Spring 2002

Leading a physical life is about so much more than how it makes you look. It’s about how it makes you feel.

Electrical Stimulation - It’s use following spinal cord injury

Associate Professor University of CT

Life expectancy for individuals living with spinal cord injuries (SCI) has increased dramatically in the past five decades. Improvements in care and treatment of persons with SCI have resulted in these individuals living longer, more productive lives. However, inactive lifestyles and lack of physical activity following SCI result in health problems that are not related to the cause of injury but to the injury itself.

Sports Massage for the Wheelchair Athlete

Director of Education for CT Chapter American Massage Therapy Association

Daily living is stressful enough to put a kink in your neck. Physically challenged people are forced to be athletes on daily basis to complete the most basic of tasks. Massage Therapists have been providing sports massage st events for years. You don’t have to be an Olympic Athlete to appreciate the benefits.

NSCIA CT Chapter Advocacy Report: Work Incentives

Beginning October 1, 2001, people with disabilities in Connecticut can earn up to $75,000/year and continue to have their medical and personal assistance services paid by Medicaid.

Nutritional Needs of a Person with Spinal Cord Injury - Part 1

Associate Professor, University of CT

Proper diet and good nutrition is important for every body, however it is even more important of a person with spinal cord injury (SCI).

And the Winners Are...

Posted May 2009

This years Dr. Philip B. Arnold Award and President’s Awards were given to Caitlin DePalma and Erin Prastine, respectfully. Caitlin is our Chapter Secretary and a Therapist in the Wheelchair clinic at Gaylord Hospital.Erin is a Therapist at Gaylord Hospital and joined our Board of Directors three years ago.

Journey Forward Exercize Program

5/1/2009

Journey Forward is a 501(c)3 non-profit organization dedicated to improving the lives of those who have suffered a spinal cord Injury through an intense exercise program. The latest research has shown that through exercise, individuals with spinal cord injuries can experience greater health, live longer lives, and most importantly gain independence and increase in function.

Light at the End of the Tunnel

A personal perspective...

I was involved in a serious car accident at the age of 18 and broke my neck in three places at C4, C5, C6, my back in two at L1 and L2, my femur and my pelvic. You can imagine, I am sure, that this experience was nothing short of a real wake up call.

Model SCI System Comes to CT

Posted May 2009

Gaylord Hospital has partnered with Boston Medical Center to become one of only 14 Model Spinal Cord Injury (SCI) Model Centers in the country, and is working to develop a New England standard of care designed to improve functional outcomes.

Attorneys That Can Help

Posted May 2009

I have been working with Attorneys Don Papcsy and Chris Antoci at the law firm Papcsy Janosov, LLC - on a personal level. (Chris and his father, Dr. Joseph Antoci, (Urologist) have been involved with the NSCIA for many years now). In the little time that I have known them, I have really learned to trust them and feel confident in their capabilities.

Golf Tournament is a Winner for the Chapter

ConnCord Winter 2009

The NSCIA-CT Chapter held its 9th annual "Wheeling and Able" Golf Tournament on Tuesday, September 9th at Lyman Orchards in Middlefield. Golfers signed up to play in record numbers with the course being oversold for the second year in a row! The success of this tournament was evident as over $16,000 was raised for the Association; the most that's ever been raised!

DISABILITY COLLABORATIVE CONVENTION 2008

ConnCord Winter 2009

The Disability Collaborative 2008 convention was a huge success. We would like to say thanks to Stan Kosloski and his group for all their hard work. Over 850 people attended the Convention and Expo on September 27, 2008 with 80 exhibitors showing their wares; nine candidates for state and national offices attended, including surrogates for Senator John McCain and President Elect Barack Obama. To visit or contact the collaborative for more information go to http://www.ctdac. org/calendar.htm.

A limit on stem cell use

April 18, 2009

WASHINGTON - When President Obama eased limits on federally funded research on embryonic stem cells, the big question became how far scientists could go. Yesterday the government answered: They must use stem cells culled from fertility-clinic embryos that otherwise would be thrown away.

Dance Workshops for Students with Disabilities

Poster March 2009

New Haven, CT…….New Haven Ballet is pleased to offer two “Shared Ability” dance workshops for students with physical, intellectual, or emotional disabilities ages 12-20. The workshops will pair these students with dancers from the New Haven Ballet Company for a fun and stimulating 90 minute program of warm up exercises, movement studies, and shared improvisations.

Computer Interface May Help The Paralyzed In The Future

November 3, 2008

Quietly in a number of laboratories, an astounding technology is developing that directly connects the human brain to a computer. It's like a sudden leap in human evolution - a leap that could one day help paralyzed people to walk again and amputees to move bionic limbs.

CT Chapter Awards for 2008

Posted October 2008

The 2008 Dr. Philip Arnold Award was given to Caitlin DePalma, and the 2008 President’s Professionals Award was given to Erin Prastine, for their exemplary service to the CT Chapter and those with spinal cord injuries.

Fundraiser Planned for Wheelchair Rugby Athletes

Posted March 2008

A fundraiser for the Connecticut Jammers Wheelchair Rugby Team will be held at 7:30 PM on March 22 at Christy’s Pub in New Haven. The benefit is part of the Christy’s Awards Night honoring Robert Chester, founder of The New Haven Old Black Rugby Club.

THE FREEDOM TO TRAVEL RADIO SHOW

Posted March 2008

Action Alert: New CMS Regulations Hurt Centers for Independent Living

Posted March 2008

Many of you have been reading lately about CMS and Targeted Case Management (TCM). Yesterday the NCIL PAS Committee hosted Representative Keith Ellison's (D-MN) Legislative Director. Representative Ellison has introduced a temporary fix to TCM (H.R. 5173) and Sen. Norm Coleman (D-MN) has introduced a companion Senate bill (S. 2578). This legislation would delay application of proposed changes to Medicaid payment rules for case management and targeted case management services.

Dr. Bernie Brucker dies at age 61

Posted February 2008

Bernard S. Brucker, an associate professor at the University of Miami department of pyschiatry and behavioral sciences and director of the Brucker Biofeedback Center at Miami Jewish Home and Hospital, died in his home of a heart attack Saturday morning. He was 61.

CT Chapter Presidents Award 2007: Cathie Anderson

Posted December 2007

This year's NSCIA CT Chapter Presidents Award was given to Cathie Anderson at our Annual Picnic at Gaylord Hospital this past summer. Cathie has continued to volunteer with our Association for the past 5 years as our Treasurer and has served as Treasurer for 2 Presidents. In addition to her volunteer work she is the CFO. Of Eastern Rehabilitation Network which co-sponsors our annual Golf Tournament in September. In addition to being a Board Member, Treasurer, Cathie has also helped re-write our bi-laws and chapters in our resource directory. It is with great honor that I presented her with this award because if it isn’t for people like Cathie our Association wouldn’t be as successful as it is today. Thank you Cathie!

Scientists Bypass Need for Embryo to Get Stem Cells

November 21, 2007

  Two teams of scientists reported yesterday that they had turned human skin cells into what appear to be embryonic stem cells without having to make or destroy an embryo — a feat that could quell the ethical debate troubling the field.

SCI CT Resource Directory Now Available Online!

Posted: November 2007

Check Out the Connecticut Tech Act Project...

Posted: November 2007

Their mission is to increase independence and improve the lives of individuals with disabilities through increased access to Assistive Technology for work, school and community living. The CT Tech Act Project operates out of the State of Connecticut, Department of Social Services, Bureau of Rehabilitation Services. Their goal is to help individuals with disabilities of all ages and all disabilities, as well as family members, employers, educators and other professionals have access to Assistive Technology devices and services.

New Diabetes and SCI Educational Brochure Available

Posted: Ocober 2007

Victory for Institutionalized Californians

Posted: Ocober 2007

Disability Civil Rights Lawsuit to Proceed as a Class Action
San Francisco, CA - The Court of Appeal for the First Appellate District handed a significant victory to people with developmental disabilities who are institutionalized throughout California. The court held that the Alameda County Superior Court case-Capitol People First (CPF) v. Department of Developmental Services (DDS)-may proceed as a class action on behalf of more than 7000 individuals who receive services from regional centers and are either living in state or private institutions, or are at risk of institutionalization.

State Budget Alert: Individuals in Danger of Losing PCA Funding

Posted May 2007

The Personal Care Assistance (PCA) Waiver in DSS is capped. People with personal assistance needs may be forced to go into a nursing facility to get supports they need. 250 Waiver slots need to be added to the DSS budget!

Bowl New England Offers Adaptive Bowling Lanes

Posted January 19, 2007

Looking for some fun? Bowl New England, a growing bowling center operator of 19 locations throughout the Northeast, has just he thing for our group to do. With 4 locations in Connecticut, we know that you will be extremely satisfied with our new renovated, handicap accessible features!

Dont't Miss The Connecticut Classic Wheelchair Rugby Tournament

Saturday, December 2nd, 2006

The Connecticut Classic Wheelchair Rugby Tournament will be held at Wallingford Parks and Recreation on Saturday, December 2nd, 2006. Sponsored by the Connecticut Jammers Quad Rugby Association. A .pdf brochure is available here to down load, with team information, directions and times -> Download .pdf

$5.1 Million Grant to Bring Together Employers, People with Disabilities

Posted: December 2006

Governor M. Jodi Rell said today that a newly-awarded $5.1 million federal grant will help Connecticut boost employment opportunities for citizens with disabilities, an initiative the Governor called important not only on human terms but for the state’s economic future.

Representatives Widlitz and Panaroni Support Tougher Penalties for Handicapped Parking Abuses

August 2006

State Representative Patricia Widlitz (D-Branford, Guilford) testified before the Transportation Committee in support of four proposed bills that address the abuse of designated handicapped parking spaces and handicapped parking permits. Rep. Widlitz co-introduced these bills with State Representative Peter Panaroni (D-Branford) who sits on the Transportation Committee. Rep. Widlitz also submitted testimony for Leesa Luna, a constituent of the 98th District, who relies on the availability of handicapped parking.

First Bush Veto Maintains Limits on Stem Cell Use

July 20, 2006

WASHINGTON, July 19 — President Bush on Wednesday rejected legislation to expand federally supported embryonic stem cell research, exercising his first veto while putting himself at odds with many members of his own party and what polls say is a majority of the public.

Federal Legislation Updates:

Spring 2006

The House has passed this bill. The Senate version is currently in the Committee for Health, Education, Labor and Pensions.

PEER MENTORS NEEDED!

Spring 2006

Contact Debbie Muenchow at dmuenchow@hfsc.org for more information.

Great Golfing! 2005 Wheeling & Able Classic

Spring 2006

On September 13, 2005 the NSCIA CT chapter held their annual “Wheeling and Able Golf Classic” at Lyman Orchards in Middlefield. Thanks to great participation, sportsmanship and amazing sponsors, the event was a great sucess. The turnout was high, the weather nice, and the golfing a swinging good time.

Shake - A - Leg Announces Summer Programs

ConnCord Spring 2006

Shake-a-Leg, located in Newport, Rhode Island, is a center for people of all ages with disabilities. Founded in 1982, it has been working to help people move past their disabilities through a variety of therapies to improve both body and mind. The programs take place at Salve Regina University and Fort Adams State Park.

Stem Cell Legislature Call to Action!

May 2006

THIS IS THE BIG ONE!
Release of Federal funding for EMBRYONIC STEM CELL RESEARCH (Bill HR. 810(house of representatives) / S.471 (senate)). This bill will approve and fund EMBRYONIC STEM CELL RESEARCH by the Federal Government to help find cures for spinal cord injury and many other diebilitating deseases. Click Here to find out what you can do!

Scientist Hopes For Stem Cell Success

Feb. 26, 2006

If paralyzed people are ever going to walk again, it might be because of the scientist in this story. His name is Dr. Hans Keirstead and he has made great strides using human embryonic stem cells. He is among the best and the brightest in his field — a field that shows enormous promise, but has been restricted by a ban on federal funding for research because it involves the destruction of human embryos.

Veering From Bush, Frist Backs Funding for Stem Cell Research

July 29, 2005

Stem cells heal spinal cords in study on rats

Stem Cell Bill, Once Seen as a Sure Thing, Is Now Mired in Uncertainty

July 23, 2005

Stem Cell Legislature Overview

July 2005

Dave Menaker of the NSCIA CT Chapter has prepared an in-depth summary of the current Stem Cell Research legislature that is currently on the Congessional agenda.

Adaptive Rowing Program Provides A New Way For The Disabled To Use Their Bodies

July 12, 2005

The program first took to the water on June 1, after some dry-land training for both able-bodied participants and those with disabilities. On Monday and Wednesday evenings through September, pairs of rowers put in at Riverfront Recapture's Greater Hartford Jaycees Community Boathouse in Riverside Park and row for an hour, knifing up the river, north of the railroad bridge and back again at least once and often twice.

INFORMATION ALERT - Opportunity to Educate

July 2005

During National Disability Employment Awareness Month (October 2005), FORTUNE Magazine, a leading business publication, will present a special section on disability employment. Previous special sections have covered topics such as Work-Life, Facing Diversity, and Corporate Learning. This special section will be included in the October 17, 2005 issue. Topics being considered include:

2005 National Disability Employment Awareness Month Theme Announced

July 2005

P.A.T.H.S Sponsors Forum on Transportation for Disabled

July 2005

Help Shape the DOT State Action Plan for a Coordinated Transportation System! The University of Connecticut Center on Disabilities is sponsoring a series of forums on transportation.

WHEELCHAIR SPORTS CAMP

Instruction in sports such as tennis, basketball and track and field, is offered by skilled disabled athletes. Days are filled with fun activities in a great setting.

AHOY, MATES! Sail CT Access Program's New Dimensions

The Board of Directors and volunteers have been very busy over the winter to improve the operation and enhance the quality of the program.

DON’T LET UTI’S SLOW YOU DOWN

Get on the road to good health with the RUSCH/MMG Closed System Intermittent Catheter, available through New Britain Medical Supplies (NBMS). It’s the only catheter proven to protect.

CARP: LEARN TO ROW ALONG THE CONNECTICUT RIVER

The Rehabilitation Hospital of Connecticut in collaboration with Riverfront Recapture and the National Spinal Cord Association, Connecticut present an opportunity to learn how to row.

TREATING PRESSURE SORES

Pressure sores may be relieved or reduced by using special surfaces to support your body, putting your body in certain positions or changing positions often.

Stem Cell Update: FEDERAL LEGISLATION HR 810

May 23, 2005

I received a note from the Christopher Reeve Foundation that the vote for bill (HR 810) will be This TUESDAY May 24th. This is not the Christopher Reeve Bill, but an independent bill that PRIMARILY covers Embryonic Stem Cell Research (ESCR). The ESCR activity was stripped out of the Christopher Reeve Bill to facilitate it's passage and not stir up those people who are aggressively anti ESCR.

Stem Cell Research Bill # 0934

Click below for previous reported information on this item from NSCIA CT:

Clinical Trials and Surveys

February 2005

Have you developed Persistent Pain, for a minimum of 3 months, from a Spinal Cord Injury? Are you an individual between the ages of 18-70 years old? If so, you maybe eligible to participate in our research study. The Brigham and Women's Hospital Department of Anesthesia is conducting a research project to evaluate investigational drugs as a treatment for specific types of pain caused by a spinal injury (SCI). The study requires 5 or 6 hospital visits over the course of 31 weeks. Contact: Kate Jenkins at 617-525-PAIN (7246), or email paintrials@partners.org

Fetal Cells Offer Hope In China

July 27, 2004

Jake Giambrone, paralyzed from the neck down, could only move his right arm. Two days after fetal cells were injected into his spine, moving his arm is no longer impossible.

Resident Helps Win Passage of Spinal Cord Injury Bill

November 2004

In late-August, Gov. Mitt Romney signed into law the Massachusetts Spinal Cord Injury Trust Bill, a bill expected ultimately to raise upwards of $1.5 million in funds generated by people who lose their driver's licenses for the third time. In order to regain their license, they will pay a $50 surcharge with $25 earmarked for this trust.

Stem Cell Molecules Repair Genetic Damage

THURSDAY, Oct. 7

Researchers report that embryonic stem cells sent molecular signals that repaired fatal genetic damage to heart cells in laboratory mice.

Christopher Reeve, 52, Symbol of Courage, Dies

October 11, 2004

Christopher Reeve, the cinematic Superman who became a real-life inspiration through his painstaking efforts to overcome total paralysis, while speaking out for stem-cell research and other potential treatments, died on Sunday at Northern Westchester Hospital in Mount Kisco, N.Y. He was 52 and lived in Pound Ridge, N.Y.

Urgent Action Alert : Help Expand Stem Cell Research

October 2004

It is the 3 Year Anniversary of President Bush's August 9, 2001 Decision To Limit Federal Funding of Embryonic Stem Cells, Show Your Support for an Expanded Policy by Signing an Online Petition.

Dont Miss: ‘A forum on the Christopher Reeves Paralysis Act’

Monday, August 09, 2004

Come and listen to Congressman Simmons discuss the four key points of the non-partisan Christopher Reeves Paralysis Act (CRPA), including embryonic stem cell research.

WHEN: Monday, August 09, 2004
TIME: 4:30 PM – 6:00 PM
WHERE: NEAT Marketplace, 120 Holcomb Street (off of Blue Hills Avenue), Harford, CT

Kerry Vows to Lift Bush Limits on Stem-Cell Research

June 22, 2004

DENVER, June 21 - Backed by the unusual endorsement of 48 Nobel laureates, Senator John Kerry on Monday accused the Bush administration of letting ideology trump science, and promised to lift the limits on federal financing of stem-cell research and to build an economy based on innovation, ingenuity and imagination.

The Sound of Music - 2004 Better Day Music Fest

June 2004

On April 8th, 2004 at Murphy and Scarletti’s in Farmington, CT the 4th annual Better Day music festival roared into success. This year’s event raised over $8,000 to fund the NSCIA – CT Chapter’s many programs, peer assistance, stop trauma and support groups to name a few.

Walking Ability Improves in Paralysis Study

May 24, 2004

MIAMI - Rats with spinal cord injuries regained 70 percent of their normal walking function with a three-part treatment hailed as a breakthrough in paralysis research at the University of Miami School of Medicine.

Top Court rules in favor of ADA

May 17, 2004

WASHINGTON -- The Supreme Court upheld the rights of people with disabilities under a national law meant to protect them, ruling Monday that a paraplegic who crawled up the steps of a small-town courthouse can sue over the lack of an elevator.

Iraqi Girl Gets Special Treatment

May 2, 2004

A year ago, Ma'rwa Ahteemi was living with her large family in rural northern Iraq and had no intention of becoming a world traveler. But in recent weeks, she has ridden roller coasters at Six Flags America in Largo, shopped at Tysons Corner mall, visited the National Zoo and yesterday served as grand marshal for the annual May Day 5K charity run in Alexandria. From a wheelchair.

FDA Approves Human Brain Implant Devices

April 14, 2004

BOSTON (AP) -- For years, futurists have dreamed of machines that can read minds, then act on instructions as they are thought. Now, human trials are set to begin on a brain-computer interface involving implants.

2004 Golf Tournament Raises Over $6000

Fall/Winter 2004

On a beautiful September 9, 2003, over 100 golfers charged the Robert Trent Jones course at Lyman Orchards Golf Club for the 4th Annual Wheeling and Able Golf Classic. This year’s tournament netted over $6,000 to fund the Spinal Cord Injury Resource Center, located at 2120 Corbin Avenue in New Britain with computers, a television, VCR and other educational materials.

Neotrofin Trial to Begin

Fall 2001

NeoTherapeutics, Inc. has expanded its Neotrofin spinal cord injury trial to include Gaylord Hospital in Wallingford, Connecticut. Gaylord is the second site participating in the spinal cord injury trial. The 12-week open-label study of Neotrofin in patients with subacute, complete spinal injury began at Rancho Los Amigos Hospital in Los Angeles in March. Additional sites are expected to join the study over the next few months.

Osteoporosis and Spinal cord injury

Spring 2002

Osteoporosis is one of the inevitable complications following spinal cord injury (SCI). It usually has no clinical signs or symptoms that may persuade the patients to seek medical treatment. It is sometimes called a silent disease. Usually, X-rays following a broken bone reveal not only the fracture but also significant bone loss and osteoporosis is detected in the SCI population. The major affected areas of the body by osteoporosis following SCI are hip bones and lower leg bones. Unfortunately, osteoporosis is considered a secondary complication following SCI and the majority of medical attention is paid to treat the primary patient’s complications. In these cases treatment and or prevention of osteoporosis is ignored.

REDI Online: A Resource for the Employment of Individuals with Disabilities

Fall 2001

Our organization, the International Association of Rehabilitation Professionals (IARP), developed a program, REDI Online, to help workers with disabilities get beyond these old beliefs and barriers and get them in front of employers to get jobs. The program is about relationships with Rehabilitation Counselors, Individuals with Disabilities and Employers. This is not an online resume data bank or listings of job openings. It is a pipeline to job opportunities through Rehabilitation Counselors to participating employers.

The Future of SCI Research

Spring 2002

In the 1890’s, Santiago Ramon Cajal, the father of modern neuroscience, first attempted to describe the nervous system. Pioneers like Sir Ludwig Guttmann and Munroe made the 1940’s the decade of the spinal cord. Research in spinal cord injury (SCI), has two different focuses today: cure, and improvement in function and quality of life.

Electrodes Help Partly Paralyzed Man Walk

Spring 2002

NEW YORK (Reuters Health) - In a development that may offer hope to some people with spinal cord injuries, Arizona researchers report that a partly paralyzed man can now walk several hundred meters after having electrodes implanted in his lower back. When used in combination with rehabilitation on a treadmill, the electric impulses delivered by the electrodes seem to have helped the spinal cord's circuitry relearn how to walk, according to Dr. Richard Herman of Arizona State University in Tempe.

Army Therapist Helps Find Care for Iraqi Child

April 08, 2004

Ma'rwa Ahteemi, an injured Iraqi child, would not be getting the help she needs today had it not been for an Army physical therapist who took a special interest in her.

FES Bike Available at Brookfield, CT YMCA

April 08, 2004

BROOKFIELD, CT - A community-based Functional Electrical Stimulation (FES) bike is now available to the public at the Brookfield CT YMCA.

The CT Dept of Social Services Needs Your Help

April 07, 2004

The Personal Care Assistance (PCA) Medicaid Waiver* needs to be renewed soon. We want to hear from community members, service or care providers, current and potential Waiver participants, advocates, and family members about Waiver services that DSS currently offers and Waiver services that the Department should offer.

Environmental Control Unit to be Showcased on ABC's Extreme Makeover: Home Edition

April 06, 2004

Tyngsboro, MA -- Quartet Technology Inc., manufacturer of assistive technology for those with physical disabilities, will have its Simplicity Series Environmental Control Unit (ECU) featured on ABC's Extreme Makeover: Home Edition on April 11, 2004 at 8:00p.m. EST.

Ma'rwa's Story: The Life of a Spinal Injured Iraqi Girl

March 11, 2004

The NSCIA CT Chapter has been following the story of Ma'rwa Ahteemi, an Iraqi girl who was accidentally injured in a U.S. mortar attack. Read about her courageous struggle in the following articles:

Improved Access to Gynecological Services

February 23, 2004

Barriers and Obstacles that prevent women with disabilities from obtaining health services are in the process of being evaluated and eliminated with the passage into law last year of now Public Act 03-40 An Act Concerning Improved Access to Gynecological Services for Women with Disabilities.

The NSCIA CT Chapter Remembers Warren A. Hunt - August 1, 1922 - January 24, 2004

We wish to honor the memory of our friend and colleague, former NSCIA CT Chapter President Warren A. Hunt at his unfortunate passing this past January.

109th Soldier Gets Aid for Spinal Cord Injured Iraqi Girl

January 24, 2004

She lost five family members and was paralyzed when a U.S. mortar attack in late November accidentally struck her home.But 12-year-old Ma'rwa Ahteemi - an Iraqi child who today sleeps on an Army cot in a field hospital meant for soldiers - might finally be getting the specialized medical help she desperately needs.

When one leg walks, the other listens - Study offers new insight into mechanics of movement

January 23, 2004

WASHINGTON - When one leg does the walking, it evidently does some talking to the other leg as well, U.S. researchers said on Friday. They said patients whose spinal cords were severed were nonetheless able to move their legs with the help of therapists.

National Spinal Cord Injury Assn. Helps Rebuild Iraqi Girl's Life

January 14, 2004

Bethesda, MD - A U.S. mortar attack that hit the wrong target in Iraq has changed the life of one little girl in that country. But the National Spinal Cord Injury Association (NSCIA) is stretching its reach across oceans and time zones in attempts to rebuild the girl’s life and help her cope with the injury that has so profoundly changed it.

Announcing CT's Spinal Cord Injury & Spina Bifida Resource Center

January 2004

Located at The Hospital For Special Care in New Britain, CT, we have a growing library of information on ADA issues and rights, housing matters (whether it’s placement, rights or remodeling), funding or financial aid, getting involved with advocacy groups or just knowing who and what is out there.

Spinal Injuries

January 2004

NFL Hall of Famer Nick Buoniconti looks like he could handle any situation. When his son was paralyzed from the neck down because of a football injury in 1985, he felt something new. Helplessness.

Save the Date! 2004 Golf Tournament - September 14, 2004

The Connecticut Chapter of the National Spinal Cord Injury Association (NSCIA-CT) is currently planning its major fundraising event, the Wheeling and Able Golf Classic, to be held September 14, 2004, at Lyman Orchards Golf Club in Middlefield, Connecticut.

STEM CELL ALERT: Upcoming Legislation Could Cripple Stem Cell Research

December 2003

On July 23rd, the House passed an amendment on human patenting offered by Dave Weldon (R-FL) as part of the Commerce-Justice-State, and Judiciary Appropriations bill (H.R. 2799). The future of biomedical research could be impaired by this secretive amendment. Specifically, House Amendment 286 would prohibit the Patent and Trademark Office (PTO) from issuing any patents on claims directed to or encompassing a human organism.
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Don't Miss the 5th Annual Wheelchair & Abilities Expo

Friday, April 2, 2004; 10 am - 3 pm.
Check out the latest in adaptive equipment at the Radison Hotel in Cromwell, CT. For Wheelchair users of all ages, friends, families, clinicians and payors.

• FREE ADMISSION/ OPEN TO THE PUBLIC
• Over 30 VENDORS!!
• Visit with BRAD DAVIS- 12 – 2 pm
• Equipment Demonstrations
• Free Wheelchair Inspections
• Free Drawing for a Microlite Scooter From Sunrise

What is Functional Electrical Stimulation (FES)?

Want to know more about FES? Here's an article for the NSCIA ConnCord by NSCIA board member Dr. Pouran Fahgri.

2002 Golf Classic to Benefit Community FES Program

September 2002

Some 100 or more golfers are expected to compete over the Lyman Orchards course to raise funds so Connecticut victims of spinal cord injuries will have greater access to the latest in a special system of rehabilitation technology known as Functional Electric Stimulation (FES).

SCI Info Group Meeting - Latest Spinal Cord Research from the Miami Project!

December 4, 2003; 5:30 - 7:30 pm

There will be Spinal Cord Injury Informational Group Meeting with a discussion on SCI research of the Miami Project.
You will be able to listen and then ask questions about what's new in SCI research as well as therapies and other benefits. The meeting will be this Thursday, December 04 5:30 to 7:30PM at Gaylord Hospital in Wallingford, CT. For more information please contact Meghan Copeland at 203 - 949 - 2178.

Riders Wanted! Inside the NSCIA CT Chapter FES Program

November, 2003

The NSCIA CT Chapter now offers several locations where those with spinal injuries can continue Functional Electrical Stimulation (FES) training in a community setting, including the latest location at the Valley Shore YMCA in Westbrook, CT.

Paraplegic Climber Starts Up Mount Fuji

Mon Sep 1, 2003, 9:06 PM

A paraplegic mountaineer headed up the lava-strewn slopes of Mount Fuji on Monday, pulling himself toward the summit in a bid to make the first such ascent of the 12,385-foot peak.

WARNING! CONNECTICUT MEDICAID CRISIS!

In 1996, Connecticut Medicaid implemented a 15% CUT in reimbursement to Wheelchair & Durable Medical Equipment providers. Now, a new proposed reduction in Medicaid reimbursement targeting Rehab Equipment Providers will have a DEVASTATING effect on the ability to provide the ESSENTIAL equipment and repair services that Medicaid beneficiaries rely upon so heavily for mobility and independent living.

Wheeling and Able Golf Classic

Tuesday, September 9, 2003

Come out for a great day of golf on one of New England’s finest public courses to benefit the programs and services of the Connecticut Chapter of the National Spinal Cord Injury Association (NSCIA-CT).

The NSCIA CT Chapter Annual Report of Fiscal Year 2001/2002 is now available online!

2003 Better Day Music Festival a Success!

June 2003

The The Better Day Music Festival fundraiser was a huge success for the NSCIA-CT Chapter. Held at Murphy’s & Scarletti’s in Farmington on April 19th, the event raised over $12,000 for the Chapter.

City of New Haven Recognizes ADA

October, 2003

The City of New Haven’s Department of Services for Persons with Disabilities would like to recognize the 13th anniversary of the signing of the Americans’ with Disabilities Act (ADA). We will be sponsoring activities on National Disability Mentoring Day, October 15, 2003.

New Center a Hub for Spinal Cord Injury Victims

June 21, 2003 - Associated Press

NEW BRITAIN, Conn. -- A new support center opening this weekend will help people with spinal cord injuries network with others like them and learn to navigate through life post-injury.

Disabilty Rights March on Washington Sept 4 - 17, 2003

September, 2003

160 people with disabilities from 25 states and 2 from Switzerland are marching and rolling from the Liberty Bell to Capitol Hill. That's 144 miles! They left Philly on Sept. 4th and will arrive in DC on September 17th. On that day, we will have the biggest ever disability rights rally in history at 1pm at Upper Senate Park at the US Capitol.

Fall - Winter 2004 Message From the President:

The year 2003 has come and gone very quickly. But before we enter 2004, the National Spinal Cord Injury Association – Connecticut Chapter is ready to make some big moves.

Sled Hockey Introduced in Connecticut

September, 2003

Chariots of Hope is introducing Sled Hockey to Connecticut at a Clinic to be held at Veterans Memorial Ice Rink in West Hartford on Saturday September 13th from 8:30 am to noon. The president of USA Sled Hockey Tom Brake will be here on the 13th to run the clinic.

Want more information on the sport of Sled Hockey?

Download a brochure!